Neuroendocrine Tumors (NETs) Support Group

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Comment

I live in Southern California and cannot find a specialist who Is experienced as the condition...

https://connect.mayoclinic.org/comment/607402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2021

Comment

When I had my tumor removed, there was no talk about any other surgery than open....

https://connect.mayoclinic.org/comment/134718/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2021

Comment

Thank you for your response. Without going into a lot of detail right now this is...

https://connect.mayoclinic.org/comment/334984/

Discussion: Metanephrines and the beginning stages (in a way) of a tumor search

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2021

Comment

UPDATE On January 6 we met with the oncologist. They feel that it is likely that...

https://connect.mayoclinic.org/comment/329144/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2021

Comment

I ve had awareness of my PANCREATIC NET for a year plus. Rare, with established core...

https://connect.mayoclinic.org/comment/257018/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2020

Comment

Hope definitely is it, when I first was diagnosed with the thyroid cancer I met this...

https://connect.mayoclinic.org/comment/284792/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2019

Comment

Thanks so much! It was a really great experience and I loved meeting Dr. THor- he...

https://connect.mayoclinic.org/comment/271261/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

Comment

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Comment

I have the same problem as you and always have low blood sugar syndrome. I tried...

https://connect.mayoclinic.org/comment/1088375/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2024

Comment

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

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