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224 total results
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Discussions (14)
Comments (210)
Comment
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
@woundedwarrior1969 Your philosophy certainly may be true for some disorders. In the case of DIPNECH the...
https://connect.mayoclinic.org/comment/965985/
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Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2023
Comment
It was very helpful and encouraging to read your comments . I have not met or...
https://connect.mayoclinic.org/comment/845625/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 19, 2023
Comment
Hi @pattirushing It's a little bit hard for me to single out all the octreotide side...
https://connect.mayoclinic.org/comment/838730/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6, 2023
Comment
@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...
https://connect.mayoclinic.org/comment/912394/
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Discussion:
How do I know somatostatin is in my system?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2023
Comment
Dr. Gaetano Rocco. He’s a thoracic surgeon, but he knew all about NETS and DIPNECH. I...
https://connect.mayoclinic.org/comment/1244665/
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Discussion:
DIPNECH diagnosis. Has anyone had radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24 1:29pm
Comment
Hi @dougmck Are your lung nodules typical carcinoids, other lung cancer or small benign nodules? DIPNECH?...
https://connect.mayoclinic.org/comment/1206138/
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Discussion:
Concerns after lobectomy for carcinoid tumor in lung
Support Group:
Lung Cancer
Posted: Jan 7 1:45pm
Comment
Hi @grec I shared my details earlier in the thread if you want to scroll back....
https://connect.mayoclinic.org/comment/1048486/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10, 2024
Comment
Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...
https://connect.mayoclinic.org/comment/835869/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...
https://connect.mayoclinic.org/comment/851198/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
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