Neuroendocrine Tumors (NETs) Support Group

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...

Hi, my name is Anita. I found out I had lung NETs in March this year. I was sent for a CT scan to check...

I had a stage 1 nodule removed from left lobe now have a new 7mm in lower lobe 3 months after surgery and they said...

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...