Neuroendocrine Tumors (NETs) Support Group

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Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...

https://connect.mayoclinic.org/comment/1067425/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

Comment

Well, Gigg66 it sounds like you and your doctors do have a plan. I'm glad to...

https://connect.mayoclinic.org/comment/1062304/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Comment

Thank you @tomrennie ! I think looking and acting positively is the best we can do!...

https://connect.mayoclinic.org/comment/1040350/

Discussion: Meet @pavalina60

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2024

Comment

Yes l have Nerocarcinoid, cancer! NETS. My breathing is labored, but l am going to do...

https://connect.mayoclinic.org/comment/1033764/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2024

Comment

Great point. My drainage was unusual - my doc thinks the resident took out a stitch...

https://connect.mayoclinic.org/comment/990297/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

Comment

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

My doctors would not listen to me at all! Just kept saying they don't know why...

https://connect.mayoclinic.org/comment/979673/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Comment

Thank you so much for the detailed response. I don’t think I would be able to...

https://connect.mayoclinic.org/comment/933174/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

Hi @bellom, welcome. I moved your post to this existing discussion: - Just diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/922124/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2023

Comment

We are strong! She has gone from stage 4 mass on pancreas and too numerous tumors...

https://connect.mayoclinic.org/comment/889675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

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