Neuroendocrine Tumors (NETs) Support Group

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Comment

Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....

https://connect.mayoclinic.org/comment/1202313/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2, 2025

Comment

I was diagnosed with carcinoid of the small intestine in March, 2018 and had 10” of...

https://connect.mayoclinic.org/comment/1520444/

Discussion: Has anyone taken Prolia for bone loss after NETs treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 2:54pm

Comment

@panorman3 , I, too, have an inoperable tumor. It’s in my stomach and was found 7...

https://connect.mayoclinic.org/comment/1260726/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

Comment

mpg20, Wow, it sounds like you’ve been through the wringer. And now doing so well! It...

https://connect.mayoclinic.org/comment/844813/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Comment

Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...

https://connect.mayoclinic.org/comment/1208675/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

My metestatic carcinoid cancer was discovered by accident when my GYN was doing an endoscopic look...

https://connect.mayoclinic.org/comment/827308/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

@badi I'm a 59 year old female, and I, too, am Stage IV Carcinoid. My original...

https://connect.mayoclinic.org/comment/822156/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2023

Comment

Terry998: This is the first time I have found a person willing to talk about Cysts...

https://connect.mayoclinic.org/comment/819547/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

@steven1953: I am sorry that you are dealing with the uncertainty of tumor progression. My situation...

https://connect.mayoclinic.org/comment/1110367/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024

Comment

Hi @Jestjohn, I have NET small intestine primary tumor near pyloric channel & duodenum that was...

https://connect.mayoclinic.org/comment/981222/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

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