Neuroendocrine Tumors (NETs) Support Group

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Comment

Just had my follow up MRI after 6 months, my serotonin levels were at 60, after...

https://connect.mayoclinic.org/comment/885750/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

I had surgery for the very same thing n 2022. Dr removed the obstruction & 1...

https://connect.mayoclinic.org/comment/1350314/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 11:49am

Comment

I tried the protein shakes when I was recovering from my resection surgery. They contain a...

https://connect.mayoclinic.org/comment/919104/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

Comment

We had a consultation with a NET oncologist He recommended taking Octreotide as he had patients...

https://connect.mayoclinic.org/comment/1060045/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Comment

Hi @sderose, thanks for the like and hug. It wasn’t that I was trying to avoid...

https://connect.mayoclinic.org/comment/817332/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

I'm glad that you found Dr. Liu's podcast helpful,@mikhailtsapenko. So, if I understand correctly, your oncologist...

https://connect.mayoclinic.org/comment/1194093/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

I get Sandostatin LAR injection every 4 weeks and neuroendocrine specialist advices against Pet GA 68...

https://connect.mayoclinic.org/comment/794761/

Discussion: PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2023

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:33pm

Comment

@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...

https://connect.mayoclinic.org/comment/1181820/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

You bring some interesting questions. The answers to those questions are not easy. We all seem...

https://connect.mayoclinic.org/comment/1169691/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

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