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Discussions (28)
Comments (269)
Comment
Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...
https://connect.mayoclinic.org/comment/867775/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 27, 2023
Comment
@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...
https://connect.mayoclinic.org/comment/861413/
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Discussion:
Net unknown cause of breathing problems
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 17, 2023
Comment
Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...
https://connect.mayoclinic.org/comment/854586/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
Comment
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 18, 2023
Comment
Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....
https://connect.mayoclinic.org/comment/842530/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 13, 2023
Comment
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
Hello @pattirushing and welcome to the NETs discussion on Mayo Clinic Connect. If you are comfortable...
https://connect.mayoclinic.org/comment/831600/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...
https://connect.mayoclinic.org/comment/827217/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16, 2023
Comment
I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...
https://connect.mayoclinic.org/comment/811356/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...
https://connect.mayoclinic.org/comment/804283/
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Discussion:
Gynecologic neuroendocrine metastasized to lungs: Need a specialist
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 31, 2023
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