Neuroendocrine Tumors (NETs) Support Group

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Comment

Thank you, Colleen, It is nice to have a connection with people on the same road....

https://connect.mayoclinic.org/comment/1075210/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Comment

Shari, that's so great to hear that you are doing so well!!! Did you have genetic...

https://connect.mayoclinic.org/comment/244183/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2019

Comment

@elgie17 I literally just did the 24 hour pee test. My husband took it in this...

https://connect.mayoclinic.org/comment/1232411/

Discussion: Just diagnosed Paraganglioma - how to treat side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2025

Comment

Hello @hunts1014 My original lesion was found during a routine upper endoscopy. My first two surgeries...

https://connect.mayoclinic.org/comment/1234763/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2025

Comment

, you had one that metastasized and a spot on your liver.But that disappeared which is...

https://connect.mayoclinic.org/comment/1376238/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2025

Comment

Hello @rkklinger and welcome to Mayo Connect. I really appreciate your post. Your husband's level of...

https://connect.mayoclinic.org/comment/1376985/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Comment

My husband was diagnosed with carcinoid in 1995. He had one tumor removed between the Illium...

https://connect.mayoclinic.org/comment/1376925/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Comment

Hello and welcome to the group. I would recommend you visit Ronny Allan’s website. He has...

https://connect.mayoclinic.org/comment/1378755/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2025

Comment

Hello @gaylejean Here is a website where you can find Carcinoid specialists by country and by...

https://connect.mayoclinic.org/comment/134554/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

Comment

My name is André. My caretaker and best friend, Stephanie (wifey) live near the Sanford/Orlando Airport....

https://connect.mayoclinic.org/comment/134542/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

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