Neuroendocrine Tumors (NETs) Support Group

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My husband has several tumors in his skull. His 1st tumor between the illium and bowel...

https://connect.mayoclinic.org/comment/1414095/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2025

Comment

@ricki8 Hi, thanks so much for the suggestion. I will try to get information on that....

https://connect.mayoclinic.org/comment/1419353/

Discussion: New NET in liver and small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2025

Comment

Many thanks to each of you for weighing in. I live on the east coast, about...

https://connect.mayoclinic.org/comment/1392953/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2025

Comment

@tomrennie yes it is mentally draining I suffer 3 anxiety disorders also social.. heath..and generalised anxiety...

https://connect.mayoclinic.org/comment/1428025/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2025

Comment

Where do you live? You want to be at a teaching hospital if possible. Like Mayo,...

https://connect.mayoclinic.org/comment/1315101/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

Comment

To jls77 It sounds like you're wanting to know about people's experiences w paragangliomas. In April...

https://connect.mayoclinic.org/comment/1164658/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2024

Comment

I am so grateful for your response to my post,and the possible connection that we may...

https://connect.mayoclinic.org/comment/803945/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

Comment

Hello! Very naive here about where I have been and how concerned I should be. Maybe...

https://connect.mayoclinic.org/comment/758149/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2022

Comment

My 29 y.o. son was diagnosed w a 2.6 cm NET on his appendix following an...

https://connect.mayoclinic.org/comment/753126/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Comment

Amen this rare disease can be very challenging but like you say we are still here...

https://connect.mayoclinic.org/comment/748499/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

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