Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

233 total results

Comment

I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes....

https://connect.mayoclinic.org/comment/1025524/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

Hi - I’m new here. But I saw your question. I was diagnosed this summer with...

https://connect.mayoclinic.org/comment/974003/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2023

Comment

I wrote you a very long detailed reply to help you and some how it got...

https://connect.mayoclinic.org/comment/911496/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

Comment

Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...

https://connect.mayoclinic.org/comment/906758/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

Hi @ce1b -- I think you have a great attitude. I agree with your thoughts. Is...

https://connect.mayoclinic.org/comment/861470/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

@kristin3 -- typical carcinoids are the best kind to have. They are the slow growing kind....

https://connect.mayoclinic.org/comment/849473/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Apr 26, 2023

Comment

Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...

https://connect.mayoclinic.org/comment/847375/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Comment

I also have 2 carcinoids in my left lung and multiple, small other nodules. My tumor...

https://connect.mayoclinic.org/comment/844958/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...

https://connect.mayoclinic.org/comment/844635/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Comment

Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...

https://connect.mayoclinic.org/comment/834726/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

Melanoma & Skin Cancer

Follow

511

54 minutes ago

Digestive Health

Follow

16166

3 hours ago

Follow

7055

5 hours ago

Pancreatic Cancer

Follow

3057

8 hours ago

Follow

8776

9 hours ago