Neuroendocrine Tumors (NETs) Support Group

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

Hi, I am struggling. I just had my 6 month surveillance mri for my pancreatic net. (It has been 3 years since my distal pancrectomy...

Hi UK based where mcas is poorly understood I have been diagnoses with autoimmune gastritis in the last few weeks Symptoms over the last few...

Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...

Sorry if this has been discussed before, but I was interested in hearing peoples experience with PRRT (Peptide Receptor Radionuclide Therapy)? I live in Georgia...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...

Hi guys, I'm very sorry for those ofyou dealing with NETs. Well, I've been in the habit of drinking a few drinks or so nightly...