Neuroendocrine Tumors (NETs) Support Group

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Comment

At a week out of surgery, I was not given any dietary restrictions, BUT I have...

https://connect.mayoclinic.org/comment/1371830/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 16, 2025

Comment

@briana311 I was diagnosed two years ago. The primary was near my small intestine. The biopsy...

https://connect.mayoclinic.org/comment/1530719/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 12:17pm

Comment

Hello, New here, found the group when searching NET on the Mayo Clinic website. My husband...

https://connect.mayoclinic.org/comment/800940/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

Comment

Hello Everyone I also have NETs that has metastasized on the inside of my Liver. I...

https://connect.mayoclinic.org/comment/739390/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

Comment

@mlassen1 Hello and welcome to Mayo Connect. I’ve been going to Mayo Jacksonville since 2017, started...

https://connect.mayoclinic.org/comment/1481778/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 10:50pm

Comment

I had genetic testing this year. Both a sibling and I found we had neuroendocrine tumors...

https://connect.mayoclinic.org/comment/1252480/

Discussion: To get genetic testing, or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Comment

@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...

https://connect.mayoclinic.org/comment/1161212/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Comment

Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...

https://connect.mayoclinic.org/comment/942618/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Comment

@robin5: Hi! I was diagnosed NET small intestine primary with liver metastases, grade1, well-def, stage 4,...

https://connect.mayoclinic.org/comment/1324502/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2025

Comment

I'm now 2 years post resection of the small intestine due to NETs. I did have...

https://connect.mayoclinic.org/comment/1345232/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 10, 2025

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