Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
297 total results
All
Discussions (28)
Comments (269)
Comment
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
Copy link to clipboard
Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
Copy link to clipboard
Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
Copy link to clipboard
Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2024
Comment
Most people have replied about CgA. I live in Uk and have grade 1, small bowel...
https://connect.mayoclinic.org/comment/1091150/
Copy link to clipboard
Discussion:
What is a normal range for Chromogranin A test? Mine was 99 in 2021.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21, 2024
Comment
I had a lung biopsy about four years ago. The procedure itself was pretty easy and...
https://connect.mayoclinic.org/comment/1079934/
Copy link to clipboard
Discussion:
Altitude change after lung biopsy/bronchoscopy
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 3, 2024
Comment
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
Copy link to clipboard
Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2024
Comment
Yes, it is scary. Waiting, making the decision. I have Nets. in both of my lungs....
https://connect.mayoclinic.org/comment/1061631/
Copy link to clipboard
Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3, 2024
Comment
I had all the NET at a before being diagnosed, probably for 5 years they CAT...
https://connect.mayoclinic.org/comment/1057160/
Copy link to clipboard
Discussion:
Flushing with NETS lung cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2024
Comment
Your case sounds almost like mine. My lung tumor is rarely mentioned & the focus seems...
https://connect.mayoclinic.org/comment/1056351/
Copy link to clipboard
Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2024
Comment
@auntiemum, I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well. See a...
https://connect.mayoclinic.org/comment/1045834/
Copy link to clipboard
Discussion:
Atypical carcinoid tumour of the lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2024
First
Previous
...
14
15
16
17
18
19
20
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect