Neuroendocrine Tumors (NETs) Support Group

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Comment

Yes, I have had 3 different upper GI's, as well as a colonoscopy. They were all...

https://connect.mayoclinic.org/comment/186247/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

Comment

Information I have seen recently says they do not go by Chromogranin A or use that...

https://connect.mayoclinic.org/comment/135491/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2017

Comment

I can relate to a little of this, Jenchaney -- I am a multifocal SiNET patient...

https://connect.mayoclinic.org/comment/135487/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2017

Comment

Has anyone heard anything about ISI labs possibly having a lot of false positives with their...

https://connect.mayoclinic.org/comment/102026/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2017

Comment

Hi @gaylejean. Thanks for sharing more of your treatment. I'm in the process of the 24...

https://connect.mayoclinic.org/comment/101999/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2016

Comment

Hi Sunshyn, may I knows 3 times PET scans within a period of how long? Any...

https://connect.mayoclinic.org/comment/1277034/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2025

Comment

What is your Chromogranin A level?

https://connect.mayoclinic.org/comment/1293708/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2025

Comment

Even with normal chromogranin Pnet can be found??

https://connect.mayoclinic.org/comment/1221557/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

Comment

Followers of this discussion may also be interested in these related discussions: - High or Fluctuating...

https://connect.mayoclinic.org/comment/1050522/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Comment

I am on large amounts of PPIs more than double the normal because of my functioning...

https://connect.mayoclinic.org/comment/1227155/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

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