Neuroendocrine Tumors (NETs) Support Group

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Comment

They tried the diazoxide on my husband but he had a bad reaction so ended up...

https://connect.mayoclinic.org/comment/934692/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

@peggymariejackson @hopeful33250 @sherikayb @debbieguk @ce1b I see some of you have lung NETs, some GI NETs,...

https://connect.mayoclinic.org/comment/861008/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

I have had a 111IN-Octreotide in 2013, and in 2014 a F-18 FDG PET/CT of the...

https://connect.mayoclinic.org/comment/186246/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

Comment

@jhhaas I’m curious. You listed a lot of symptoms but said you haven’t needed treatment shots...

https://connect.mayoclinic.org/comment/1205397/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 2:18pm

Comment

This is my 6 years trying to get information for having Neuroendocrine Cancer, lung Nets! I...

https://connect.mayoclinic.org/comment/1203278/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 3:32pm

Comment

Thx for sharing. Did they say if her tumor was functioning or non functioning from the...

https://connect.mayoclinic.org/comment/1163510/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2024

Comment

Thank you for the detailed description, already feeling less stressed. I’ve done a lot of reading...

https://connect.mayoclinic.org/comment/1339250/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 4:51pm

Comment

@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....

https://connect.mayoclinic.org/comment/962492/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

Comment

Hi, Sandostation Octreotide 30mg. He had the last one two weeks ago on a Friday. I...

https://connect.mayoclinic.org/comment/832647/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

Comment

Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...

https://connect.mayoclinic.org/comment/1071013/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

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