Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband took Octreotide shots for about 18 months, side effects slightly looser stools & then...

https://connect.mayoclinic.org/comment/1269466/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

Comment

My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...

https://connect.mayoclinic.org/comment/1144312/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2024

Comment

Good point about Octreotide, I would definitely be asking the Dr. I made it almost 2...

https://connect.mayoclinic.org/comment/1274338/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2025

Comment

The fact that things are stable is excellent! Frankly since there is no evidence of disease...

https://connect.mayoclinic.org/comment/1498538/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:33am

Comment

That's great news! Thanks for updating us. I know you indicated that she has an oncologist...

https://connect.mayoclinic.org/comment/1360503/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2025

Comment

My husband does the Lanreotide 120 every 28 days. Medicare B covers 100%. He then did...

https://connect.mayoclinic.org/comment/1134950/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Comment

They tried the diazoxide on my husband but he had a bad reaction so ended up...

https://connect.mayoclinic.org/comment/934692/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

My primary NET tumor was surgically removed from the mesentery along with 15 lymph nodes (9...

https://connect.mayoclinic.org/comment/1480992/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 10:39pm

Comment

I take octreotide injections and get inappropriate huge blood sugar spikes anytime I eat anything other...

https://connect.mayoclinic.org/comment/1356060/

Discussion: Lanrotide & PRRT: Blood sugar and gluten

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Comment

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

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