Neuroendocrine Tumors (NETs) Support Group

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Comment

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Comment

Hello My mom aged 57 is going through a similar set of problems. Back pain. To...

https://connect.mayoclinic.org/comment/944751/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

Comment

I'm exactly your age and my situation appears to be exactly like yours. But my journey...

https://connect.mayoclinic.org/comment/941331/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Comment

if you are taking proton inhibitors it can increase your Chromogranin A results. Something I recently...

https://connect.mayoclinic.org/comment/926200/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

Comment

I had another PET last week. They suggest I get an Adrenal MRI… possible tumors. Had...

https://connect.mayoclinic.org/comment/900814/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2023

Comment

Hi. My Chromagranin A also elevated at 2590, an elevated 5-HIAA and elevated somatostatin level. Octreo...

https://connect.mayoclinic.org/comment/893983/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Comment

Thank you Teresa! You are spot on on my intension. The Ki67 was done and found...

https://connect.mayoclinic.org/comment/885535/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Hi, i hope someone can make my mind ease My mom since her period ended she...

https://connect.mayoclinic.org/comment/851567/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Thank you for moving my post ! And for sure I will continue to share! Because...

https://connect.mayoclinic.org/comment/827678/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...

https://connect.mayoclinic.org/comment/825153/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

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