Neuroendocrine Tumors (NETs) Support Group

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Comment

@tjatsaufr: I relate to your concern over radionuclide radiation; however, the nuclear medicine department at your...

https://connect.mayoclinic.org/comment/1358334/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 10:10am

Comment

I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized...

https://connect.mayoclinic.org/comment/1309905/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21 8:57pm

Comment

Hi, Teresa. we all appreciate your initiative on the impact of surgery on our digestive tract,...

https://connect.mayoclinic.org/comment/1352877/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 20 9:57pm

Comment

Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...

https://connect.mayoclinic.org/comment/885814/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Yes, there is a diagnostic test you can and should have. It's a PT CT Dototate...

https://connect.mayoclinic.org/comment/792451/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Comment

Hi @taneall I am in the same boat as your husband...grade 1, stage 4. It is...

https://connect.mayoclinic.org/comment/892998/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2023

Comment

Kwan, I had PRRT at Mayo in Phoenix from April - October 2021 for various non-resectable...

https://connect.mayoclinic.org/comment/1060569/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Comment

@robin5: Hi! I was diagnosed NET small intestine primary with liver metastases, grade1, well-def, stage 4,...

https://connect.mayoclinic.org/comment/1324502/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 5:29pm

Comment

Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...

https://connect.mayoclinic.org/comment/942618/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Comment

I'm now 2 years post resection of the small intestine due to NETs. I did have...

https://connect.mayoclinic.org/comment/1345232/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 10 1:24pm

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