Neuroendocrine Tumors (NETs) Support Group

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409 total results

Comment

Hello @jlsgt and welcome to the NETs support group on Mayo Connect. NETs are a rare...

https://connect.mayoclinic.org/comment/1106357/

Discussion: NETS Mesentery, Small Bowel Resection, Lanreotide, Octreotide, Story

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2024

Comment

I’m so sorry to hear your mother is having these terrible symptoms, , I’m 61 and...

https://connect.mayoclinic.org/comment/940275/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

I had surgery in 2007 when they found the tumor. They removed it, along with most...

https://connect.mayoclinic.org/comment/898942/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

"How much was removed did they reconnect, did you wear a colostomy bag?" They removed approximately...

https://connect.mayoclinic.org/comment/1312645/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

I have had two surgeries for nets. The first was in my small intestine, so had...

https://connect.mayoclinic.org/comment/875909/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Comment

I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating...

https://connect.mayoclinic.org/comment/1518565/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 11:05am

Comment

@dadcue I'm not a doctor, so my opinion is just that an unqualified/unskilled opinion. For me...

https://connect.mayoclinic.org/comment/1543997/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 10:34am

Comment

I’m home now after surgery and 8 nights in hospital, mostly in the ICU. It was...

https://connect.mayoclinic.org/comment/844203/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

Comment

I had 12" of my small intestine removed 12 years ago because of carcinoid tumors, at...

https://connect.mayoclinic.org/comment/752921/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Comment

I have a reoccurrence of NETs. One by small intestine and another in the liver. I’m...

https://connect.mayoclinic.org/comment/1467173/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2025

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