Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi all, hoping spring is good and well for you. I’m circling back to my post...

https://connect.mayoclinic.org/comment/1275884/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2025

Comment

Hi mgb20, following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1,...

https://connect.mayoclinic.org/comment/890032/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2023

Comment

My situation sounds a little similar in that they marked my tumor from a CT scan...

https://connect.mayoclinic.org/comment/944168/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Comment

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Comment

Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....

https://connect.mayoclinic.org/comment/1015601/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

Hi thalverson, On July 1, 2022 I had the surgical removal of a neuroendocrine tumor in...

https://connect.mayoclinic.org/comment/953017/

Discussion: Anyone suffered with diarrhea 3 mos after surgery small intestine NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

@astaingegerdm Thank you! I feel like a cry baby right now. Lol. Here I am, in...

https://connect.mayoclinic.org/comment/676577/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2022

Comment

I was suffering before my surgery with 3 small bowel constrictions due to Nets. I had...

https://connect.mayoclinic.org/comment/1216360/

Discussion: Carotid body tumor encasing completely carotid artery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I...

https://connect.mayoclinic.org/comment/874619/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

PRRT is hung up with the FDA approval process. I can't post messages with links yet,...

https://connect.mayoclinic.org/comment/127206/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

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