Neuroendocrine Tumors (NETs) Support Group

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Comment

I don’t mind you asking at all :). The allergy desensitization involved an admission to ICU...

https://connect.mayoclinic.org/comment/839294/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Comment

Welcome Lenora, I'm so glad that you posted about your NETs story after following the discussions...

https://connect.mayoclinic.org/comment/668647/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

Comment

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...

https://connect.mayoclinic.org/comment/1067737/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Comment

I was hoping someone had the same problem and had the answer to reducing the mass....

https://connect.mayoclinic.org/comment/739376/

Discussion: Lanreotide injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

Comment

I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the...

https://connect.mayoclinic.org/comment/668464/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

Comment

Good point about Octreotide, I would definitely be asking the Dr. I made it almost 2...

https://connect.mayoclinic.org/comment/1274338/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 4:41pm

Comment

Was diagnosed with stage IV with primary in Duednum and 4 tumors in liver. Been on...

https://connect.mayoclinic.org/comment/1365332/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6 8:57pm

Comment

@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues...

https://connect.mayoclinic.org/comment/830375/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...

https://connect.mayoclinic.org/comment/1350383/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 1:21pm

Comment

Wow! To all in this discussion. My husband is due to have his first liver debulking...

https://connect.mayoclinic.org/comment/771459/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

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