Neuroendocrine Tumors (NETs) Support Group

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Thank you so much for sharing your journey. Wishing you good health and lots of adventures!...

https://connect.mayoclinic.org/comment/845245/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Octreotide LAR is technically designed to control to symptoms of carcinoid (diarrhea, flushing, nausea, etc) which...

https://connect.mayoclinic.org/comment/1060800/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Comment

Hi...I had the gallium PET. It was negative. But a CT enterography found it... I'm not...

https://connect.mayoclinic.org/comment/1386858/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2025

Comment

@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...

https://connect.mayoclinic.org/comment/1054381/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Comment

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2025

Comment

@pavlina60 Thank you .wish u a healthy life. My sister has completed her Etoposide and Cisplatin...

https://connect.mayoclinic.org/comment/1409683/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2025

Comment

I need to know how long after PRRT treatment should you get a MRI with contrast...

https://connect.mayoclinic.org/comment/1169156/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2024

Comment

Only if the give me anesthesia will I have to get an injection of octreotide I...

https://connect.mayoclinic.org/comment/1322184/

Discussion: Root canal without Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2025

Comment

We received the confirmation from Mayo. His diagnosis is Atypical Stage 3/grade 2. He was given...

https://connect.mayoclinic.org/comment/1330147/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

@markmark007 The nurse told me the manufacturer was no longer making lanreotide. Ive had more fatigue...

https://connect.mayoclinic.org/comment/1428966/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2025

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