Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
297 total results
All
Discussions (28)
Comments (269)
Comment
What I did was to do a deep dive into the process. First I set my...
https://connect.mayoclinic.org/comment/1000033/
Copy link to clipboard
Discussion:
Possible NET: Waiting for the endo appointment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2024
Comment
@lcbrazen100 I just stopped my AI this last July after 5 years...doctor wanted me to go...
https://connect.mayoclinic.org/comment/984628/
Copy link to clipboard
Discussion:
Anyone have neuroendocrine tumor (NETs) of the breast?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 21, 2023
Comment
@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...
https://connect.mayoclinic.org/comment/968340/
Copy link to clipboard
Discussion:
Anyone have neuroendocrine tumor (NETs) of the breast?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 20, 2023
Comment
@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...
https://connect.mayoclinic.org/comment/965599/
Copy link to clipboard
Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2023
Comment
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
Copy link to clipboard
Discussion:
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 3, 2023
Comment
@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...
https://connect.mayoclinic.org/comment/937831/
Copy link to clipboard
Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 28, 2023
Comment
I have some small nodules in my lungs but my NET doctor said everyone has them...
https://connect.mayoclinic.org/comment/912003/
Copy link to clipboard
Discussion:
FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2023
Comment
Hello Diet information can be found at https://netrf.org/. I have stage 3 lung NETs and have...
https://connect.mayoclinic.org/comment/899083/
Copy link to clipboard
Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
Thanks…. My diagnosis was Large Cell lung NETs, I was told it was more aggressive than...
https://connect.mayoclinic.org/comment/897051/
Copy link to clipboard
Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
Comment
Hi @ce1b I take Octreotide (similar to lanreotide) injections every 4 weeks for my lung NETs....
https://connect.mayoclinic.org/comment/896824/
Copy link to clipboard
Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
First
Previous
...
11
12
13
14
15
16
17
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect