Neuroendocrine Tumors (NETs) Support Group

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Comment

@ant12 One more thing, lanreotide/octreotide injections can really help with carcinoid syndrome -- the flushing, diarrhea,...

https://connect.mayoclinic.org/comment/1033639/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2024

Comment

One of the first things they did for my husband was to put him on OCTREOTIDE...

https://connect.mayoclinic.org/comment/895361/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2023

Comment

After a year on Octreotide 2 of my 16 Tumors showed some growth, ( No New...

https://connect.mayoclinic.org/comment/1056307/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Comment

Before I was put on Lanreotide I had no symptoms Lanreotide gave me such a horrible...

https://connect.mayoclinic.org/comment/1249217/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2025

Comment

Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...

https://connect.mayoclinic.org/comment/835869/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

Did the doctors give you any thoughts on why the tumors were growing fast when you...

https://connect.mayoclinic.org/comment/1344033/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8, 2025

Comment

I have received the short term Octreotide while in the hospital. It was given to me...

https://connect.mayoclinic.org/comment/1132551/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2024

Comment

Within days of my first shot of sandostatin I developed rheumatoid arthritis severe. But what was...

https://connect.mayoclinic.org/comment/1530404/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 7:01am

Comment

Thank you, I feel great! Recent CT FU with oncologist shows only one area of concern....

https://connect.mayoclinic.org/comment/1272555/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

https://www.google.com/search?q=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&rlz=1C1UEAD_enUS1116US1116&oq=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRiPAjIHCAIQIRiPAtIBCTIzODIzajBqN6gCALACAA&sourceid=chrome&ie=UTF-8 Above is the source. I have read that it is not 100% effective with everyone...

https://connect.mayoclinic.org/comment/1346165/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2025

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