Neuroendocrine Tumors (NETs) Support Group

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Comment

As promised here is my update from Thursday (Jul 23). Lab work, CT on office visit...

https://connect.mayoclinic.org/comment/257031/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2020

Comment

Hello @kaforester3, I can understand your concerns, especially when your doctor does not give you much...

https://connect.mayoclinic.org/comment/308776/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2020

Comment

I’d had GI issues for years, never mentioned it to doctors. I was diagnosed Lactose intolerance...

https://connect.mayoclinic.org/comment/303673/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2020

Comment

Hello @wdd18054 My carcinoids were found with an upper endoscopy (is that what you meant by...

https://connect.mayoclinic.org/comment/186237/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2018

Comment

Hi Samotuline Depot is actually Lanreotide, so it is probably not a substitution. Regarding serotonin in...

https://connect.mayoclinic.org/comment/1462076/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2025

Comment

Hello everybody, I hope you are all doing well. I'm quite worried for my mom (she...

https://connect.mayoclinic.org/comment/1460768/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 14, 2025

Comment

After you have the resection I assume you will start monthly injections(?), ask your Dr. I...

https://connect.mayoclinic.org/comment/1348467/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

I appreciate your response. Did you have any other symptoms besides flushing? Also, did you have...

https://connect.mayoclinic.org/comment/1294812/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Comment

Hello all, I have been on PPI's since the mid 80's when I had a perforated...

https://connect.mayoclinic.org/comment/1276226/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2025

Comment

Hello . how are you? thank you very much for responding. My wife has a date...

https://connect.mayoclinic.org/comment/1234079/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025