Neuroendocrine Tumors (NETs) Support Group

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Comment

Symptoms are the same..but chromogranin was 30 i will have pet scan next month

https://connect.mayoclinic.org/comment/1221538/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

Comment

Hello, good afternoon. My name is Gustavo. I am from Buenos Aires, Argentina. My wife had...

https://connect.mayoclinic.org/comment/1231924/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

Gustavo1975, there are other things that can cause an elevated Chromogranin A (such as the patient...

https://connect.mayoclinic.org/comment/1234066/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Comment

Hello . how are you? thank you very much for responding. My wife has a date...

https://connect.mayoclinic.org/comment/1234079/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Comment

Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...

https://connect.mayoclinic.org/comment/1194306/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

Hello all, I have been on PPI's since the mid 80's when I had a perforated...

https://connect.mayoclinic.org/comment/1276226/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2025

Comment

After you have the resection I assume you will start monthly injections(?), ask your Dr. I...

https://connect.mayoclinic.org/comment/1348467/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...

https://connect.mayoclinic.org/comment/825153/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

Hello @jimmiel3 and welcome to Mayo Clinic Connect. I can certainly understand your concern about the...

https://connect.mayoclinic.org/comment/821937/

Discussion: Chromogranin A test via Quest: symptoms of NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2023

Comment

Hello @rice099 and welcome to the NETs discussion on Mayo Clinic Connect. I have moved your...

https://connect.mayoclinic.org/comment/815117/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2023

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