Neuroendocrine Tumors (NETs) Support Group

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Comment

@isaiah5417nt, when I had a blockage in my small intestine in 2018, they also found one...

https://connect.mayoclinic.org/comment/835728/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...

https://connect.mayoclinic.org/comment/883717/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

I’m having similar problems and am no sure whether it’s the lanreotide or the 15” removed...

https://connect.mayoclinic.org/comment/858717/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Comment

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Comment

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Comment

Hi, I have a carcenoid tumor, inoperable, stage 4 cancer, in my Mesentery, it is in...

https://connect.mayoclinic.org/comment/748346/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Comment

My NET was discovered incidentally to an abdominal CT—it was a walnut-size tumor in the mesentery...

https://connect.mayoclinic.org/comment/829313/

Discussion: Has the NET found in my axilla or arm pit likely to have spread?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Comment

Thanks for sharing, my experience was very similar (see below) additionally they removed the right side...

https://connect.mayoclinic.org/comment/1236619/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2025

Comment

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Comment

Question… I am having surgery the first week of November to remove roughly 12 inches of...

https://connect.mayoclinic.org/comment/764338/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

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