Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @mukul123 and welcome to Mayo Connect. I see that you are looking for direction for...

https://connect.mayoclinic.org/comment/786179/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

Hello. I wanted to add some information about the testosterone issues you mentioned. My husband was...

https://connect.mayoclinic.org/comment/1385205/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2025

Comment

"My question is simply, would not eating these foods if I am not having problems change...

https://connect.mayoclinic.org/comment/1143047/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Comment

My tumor was about the size of a twinkie with arms constricting my small bowel in...

https://connect.mayoclinic.org/comment/1307762/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025

Comment

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...

https://connect.mayoclinic.org/comment/834012/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

The appointment with the endocrinologist is for pituitary which is what got me in door because...

https://connect.mayoclinic.org/comment/676077/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2022

Comment

My experience is rather like your husband's only many less tumors found during surgery. I have...

https://connect.mayoclinic.org/comment/137535/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Comment

@tiambeth70: You have found a good source of information, both from Mentors and NET peers going...

https://connect.mayoclinic.org/comment/1507074/

Discussion: Husband has miliary seeding metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 9:05am

Comment

@donbarks: I too have primary in small bowel (grade 1, stage4) with metastases in liver (no...

https://connect.mayoclinic.org/comment/1497043/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3 9:02am

Comment

Back in 2019 they said NED. But I’m not sure as right now because I had...

https://connect.mayoclinic.org/comment/773423/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2022

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