Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
583 total results
All
Discussions (47)
Comments (536)
Comment
Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...
https://connect.mayoclinic.org/comment/835869/
Copy link to clipboard
Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
@ineedawhale Yes. I had the DOTATATE Cu64 scan. As it turned out it wasn’t more valuable...
https://connect.mayoclinic.org/comment/1358919/
Copy link to clipboard
Discussion:
Recently diagnosed with a NET in my middle lobe of my right lung.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28 11:54pm
Comment
Thank you so much for sharing your journey. Wishing you good health and lots of adventures!...
https://connect.mayoclinic.org/comment/845245/
Copy link to clipboard
Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 18, 2023
Comment
Octreotide LAR is technically designed to control to symptoms of carcinoid (diarrhea, flushing, nausea, etc) which...
https://connect.mayoclinic.org/comment/1060800/
Copy link to clipboard
Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 2, 2024
Comment
I take octreotide injections and get inappropriate huge blood sugar spikes anytime I eat anything other...
https://connect.mayoclinic.org/comment/1356060/
Copy link to clipboard
Discussion:
Lanrotide & PRRT: Blood sugar and gluten
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25 11:03am
Comment
Thank you, I feel great! Recent CT FU with oncologist shows only one area of concern....
https://connect.mayoclinic.org/comment/1272555/
Copy link to clipboard
Discussion:
Has anyone had the peritoneal stripping surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 2 11:14am
Comment
@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...
https://connect.mayoclinic.org/comment/1304347/
Copy link to clipboard
Discussion:
I’m living with Pancreatic Neuroendocrine Cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 14 8:48pm
Comment
@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...
https://connect.mayoclinic.org/comment/1054381/
Copy link to clipboard
Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
Hello again @phoebeghostwriter Here is a link that will direct you to other tests that can...
https://connect.mayoclinic.org/comment/670209/
Copy link to clipboard
Discussion:
Do NET tumors show up in basic blood work?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 12, 2022
Comment
I need to know how long after PRRT treatment should you get a MRI with contrast...
https://connect.mayoclinic.org/comment/1169156/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 6, 2024
First
Previous
...
9
10
11
12
13
14
15
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect