Neuroendocrine Tumors (NETs) Support Group

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Comment

At minimum every 6 months, but also as needed if symptoms dictate. My endocrinologist is very...

https://connect.mayoclinic.org/comment/843305/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

I asked my oncologist about the NO EPI and if it should be on my medical...

https://connect.mayoclinic.org/comment/137547/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2017

Comment

Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots....

https://connect.mayoclinic.org/comment/1410494/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Comment

Very interested in your second opinion that indicated you did not need the Octreotide injections. I...

https://connect.mayoclinic.org/comment/1171874/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Comment

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Comment

I have never had symptoms. My NET's were discovered accidentally during a CT scan when they...

https://connect.mayoclinic.org/comment/1522305/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8 9:21am

Comment

What treatment did they prescribe when your tumors were found 16 years ago? How long have...

https://connect.mayoclinic.org/comment/1179256/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Comment

*Update* My treatment regimen has been changed....it was 20mg octreotide every 28days it has been changed...

https://connect.mayoclinic.org/comment/1106072/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

Comment

I didn’t have success with my Dotatate scan either. I recently started the octreotide shots and...

https://connect.mayoclinic.org/comment/1358995/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29, 2025

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