Neuroendocrine Tumors (NETs) Support Group

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Comment

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

Comment

I will be having robotic surgery on July 11 to have the NETs cancer removed from...

https://connect.mayoclinic.org/comment/1079515/

Discussion: Altitude change after lung biopsy/bronchoscopy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2024

Comment

Lately, I have started coughing out of the blue for no reason. Has anyone else with...

https://connect.mayoclinic.org/comment/1066295/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2024

Comment

Thank you Phyllisden, yes l saw my two doctors oncologists, and thorax thoracic surgeon. They said...

https://connect.mayoclinic.org/comment/1062199/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Comment

Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do...

https://connect.mayoclinic.org/comment/1056725/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Comment

Sorry l have been sick, Yes it was the scan we all were talking about! The...

https://connect.mayoclinic.org/comment/1033757/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2024

Comment

Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1022080/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Comment

Last week was diagnosed with Neuro endocrine tumor "nodules.". It is referred as! Biopsy of carcinoid,...

https://connect.mayoclinic.org/comment/1021964/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2024

Comment

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Comment

mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...

https://connect.mayoclinic.org/comment/945761/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11, 2023

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