Neuroendocrine Tumors (NETs) Support Group

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Comment

They suggested that nothing can be said at the moment but since all the Ct scan...

https://connect.mayoclinic.org/comment/760819/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 13, 2022

Comment

Mark, you may also be interested in asking fellow members about their experiences with getting CgA...

https://connect.mayoclinic.org/comment/745411/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2022

Comment

I'm glad to hear that you are feeling better @tracyfurtiscaudle. I hope that your blood work...

https://connect.mayoclinic.org/comment/643479/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Comment

I am currently seeing a homeopathic doctor who has prescribed ABP1 Assist Histamine/Gut & Histamine Scavenger...

https://connect.mayoclinic.org/comment/625065/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2021

Comment

Thank you for your reply! I have my endocrinologist, oncologist and gastroenterologist (I seem to have...

https://connect.mayoclinic.org/comment/623014/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2021

Comment

Hello @dbmenger I see that you are still dealing with high fluctuating high Chromogranin-A levels and...

https://connect.mayoclinic.org/comment/622828/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2021

Comment

Did you also have the HIAA5 urine test? I had a 540 Chromogranin test result. Two...

https://connect.mayoclinic.org/comment/617200/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2021

Comment

That is good news, @kaforester3, yes, PPI meds like the ones you mentioned can cause high...

https://connect.mayoclinic.org/comment/308786/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2020

Comment

Dana Farber in Boston has the Gallium 68 Dotatate PET scan. My Chromagranin tests have all...

https://connect.mayoclinic.org/comment/308781/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2020

Comment

@klpetts I so appreciate the update and I'm so pleased for you!!! It is so good...

https://connect.mayoclinic.org/comment/257032/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2020

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