Neuroendocrine Tumors (NETs) Support Group

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Comment

2590 chromagranin A, I know HIGH right. Dotatate scan positive area pancreas and octreo scan showed...

https://connect.mayoclinic.org/comment/896692/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

I was first diagnosed with NETs in 2004 so I’ve had LOTS of lab-work done over...

https://connect.mayoclinic.org/comment/889603/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Hello, I was recently tested for chromogranin a because of ongoing flushing and stomach issues. My...

https://connect.mayoclinic.org/comment/860119/

Discussion: Chromogranin A test via Quest: symptoms of NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2023

Comment

Hi @charlene630, welcome. I see that you recently had a blood test to check the chromogranin...

https://connect.mayoclinic.org/comment/850020/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2023

Comment

Chromogranin A blood test I need some information on how serious high levels are. Mine are...

https://connect.mayoclinic.org/comment/849279/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Comment

Hello @wdd18054 My carcinoids were found with an upper endoscopy (is that what you meant by...

https://connect.mayoclinic.org/comment/186237/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2018

Comment

Having a high count on Chromogranin is indicative of a Neuroendocrine tumor, regardless of whether or...

https://connect.mayoclinic.org/comment/1232800/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2025

Comment

I appreciate your response. Did you have any other symptoms besides flushing? Also, did you have...

https://connect.mayoclinic.org/comment/1294812/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Comment

Just some info that might help you: Until you have NETs under a microscope, you're insurance...

https://connect.mayoclinic.org/comment/1227630/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Comment

When it spread how much chromogranin did you have?

https://connect.mayoclinic.org/comment/1221556/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

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