Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi there Vinnie, I was recently diagnosed with the same, metastasized to liver. Did you have...

https://connect.mayoclinic.org/comment/903584/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

Thank you for taking the time to respond.. I just found all of this out on...

https://connect.mayoclinic.org/comment/1350633/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

I think we are all given a variety of answers depending on? (not sure what), but...

https://connect.mayoclinic.org/comment/952689/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

UPDATE: On January 28 I had surgery. 27cm of the small intestine was removed and 15cm...

https://connect.mayoclinic.org/comment/329142/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2021

Comment

My wife has been battling NETs since 2014; pancreas and small intestine; they have metastasized to...

https://connect.mayoclinic.org/comment/1450650/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2025

Comment

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

Comment

Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...

https://connect.mayoclinic.org/comment/797748/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

Both my brother and I had NETs first found in the mesentery of the small intestine....

https://connect.mayoclinic.org/comment/1445267/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2025

Comment

Good morning, my primary is also my small intestine, and it spread to my liver. Diagnosed...

https://connect.mayoclinic.org/comment/1368874/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2025

Comment

Same here. Had colon cancer and had all my large intestine removed 3 yrs ago now...

https://connect.mayoclinic.org/comment/232851/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 6, 2019

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