Neuroendocrine Tumors (NETs) Support Group

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Comment

I began PRRT in June 2024 and today received the 3rd infusion without any issues. I...

https://connect.mayoclinic.org/comment/1150466/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2024

Comment

I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and...

https://connect.mayoclinic.org/comment/811172/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Comment

Thank you Teresa for the information on the carcinoid cancer foundation site and the Mayo Clinic...

https://connect.mayoclinic.org/comment/801356/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Comment

Welcome, @4237220. I agree with @maya8238 that it sounds like the cancer has been caught early...

https://connect.mayoclinic.org/comment/797237/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Comment

Hello @rogerstc and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1014189/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Comment

Hello @tkubista and welcome to Mayo Clinic Connect! I am sorry to hear about your NET...

https://connect.mayoclinic.org/comment/329137/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2020

Comment

I have stage 3 NET cancer and had a large tumor in my small intestine removed,...

https://connect.mayoclinic.org/comment/942886/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

Cobraman: Hi! I received diagnosis of small intestine (duodenum) NET tumor that had metastasized to liver...

https://connect.mayoclinic.org/comment/868984/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Comment

@lastround your diagnosis seems so similar to my dads story in the sense of areas affected...

https://connect.mayoclinic.org/comment/834179/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

@steven1953: I am sorry that you are dealing with the uncertainty of tumor progression. My situation...

https://connect.mayoclinic.org/comment/1110367/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024