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Discussions (44)
Comments (314)
Comment
Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....
https://connect.mayoclinic.org/comment/848478/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
I hope your issues resolve quickly and the plan goes well. This past year I've had...
https://connect.mayoclinic.org/comment/749896/
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Discussion:
Intestinal Blockage with NETs: Anyone else?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 15, 2022
Comment
@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...
https://connect.mayoclinic.org/comment/1284269/
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Discussion:
NET in jejunum spread to liver: Treatment options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 17 7:52pm
Comment
Question… I am having surgery the first week of November to remove roughly 12 inches of...
https://connect.mayoclinic.org/comment/764338/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 23, 2022
Comment
thanks for the suggestions. I checked the info on Creon and I am on Allopurinol for...
https://connect.mayoclinic.org/comment/1118272/
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Discussion:
Everolimus for multiple Neuroendocrine tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 5, 2024
Comment
My tumors started in the small intestine and metastasized to the liver before I was diagnosed....
https://connect.mayoclinic.org/comment/1072655/
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Discussion:
Flushing with NETS lung cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 22, 2024
Comment
Thanks for sharing, my experience was very similar (see below) additionally they removed the right side...
https://connect.mayoclinic.org/comment/1236619/
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Discussion:
I recently had surgery to remove NET in small intestine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14 9:11am
Comment
My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...
https://connect.mayoclinic.org/comment/885643/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:...
https://connect.mayoclinic.org/comment/1348269/
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Discussion:
What's next after SiNETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 14 4:35pm
Comment
My NET was discovered incidentally to an abdominal CT—it was a walnut-size tumor in the mesentery...
https://connect.mayoclinic.org/comment/829313/
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Discussion:
Has the NET found in my axilla or arm pit likely to have spread?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 20, 2023
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