Neuroendocrine Tumors (NETs) Support Group

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Comment

My NETs was found during an episode of jaundice, where a bile duct was blocked by...

https://connect.mayoclinic.org/comment/755807/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Comment

@melmangen, might Mayo Clinic in Jacksonville, Florida be an option for you? Mayo Clinic, Florida has...

https://connect.mayoclinic.org/comment/753620/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

Comment

Hello @coco1, I see that @char1962 has already connected with you. I would like to join...

https://connect.mayoclinic.org/comment/748313/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Comment

@tomrennie Good job finding a local NET surgeon for her! Great that our conversation helped someone...

https://connect.mayoclinic.org/comment/1432521/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Comment

@nannybb A regular PET scan looks for high metabolic activity because cancer cells use a lot...

https://connect.mayoclinic.org/comment/1431078/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

@californiazebra I know that mine are a grade 2. It is listed as such in my...

https://connect.mayoclinic.org/comment/1430739/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

@jessie1990 Great news and that sounds right for typical lung NETs. They monitor with CT scans...

https://connect.mayoclinic.org/comment/1430647/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

Hello @jessie1990, and welcome to the NETs support group on Mayo Clinic Connect. Carcinoid tumors are...

https://connect.mayoclinic.org/comment/1426976/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Comment

Mark, sorry to hear about the progression and all you’re going through. My brother had lung...

https://connect.mayoclinic.org/comment/1410645/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

@kdubbs DIPNECH sounds much scarier than it is. Sloooowww growing. You’ll be around for a long...

https://connect.mayoclinic.org/comment/1394217/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

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