Neuroendocrine Tumors (NETs) Support Group

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Comment

I was first diagnosed with NETs in 2004 so I’ve had LOTS of lab-work done over...

https://connect.mayoclinic.org/comment/889603/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Hello, I was recently tested for chromogranin a because of ongoing flushing and stomach issues. My...

https://connect.mayoclinic.org/comment/860119/

Discussion: Chromogranin A test via Quest: symptoms of NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2023

Comment

Hi @charlene630, welcome. I see that you recently had a blood test to check the chromogranin...

https://connect.mayoclinic.org/comment/850020/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2023

Comment

Chromogranin A blood test I need some information on how serious high levels are. Mine are...

https://connect.mayoclinic.org/comment/849279/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Comment

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

My Chromogranin has never been out of normal range. It's not very high out of normal,...

https://connect.mayoclinic.org/comment/809618/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Comment

Could I please ask how high your Chromogranin A levels actually where?

https://connect.mayoclinic.org/comment/805031/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

I was diagnosed with Carcinoid in 2007. The mass had grown around several loops of my...

https://connect.mayoclinic.org/comment/804478/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

I had high Chromograni A before whipple surgery to remove a Nuroendocrine gastrinoma tumour in the...

https://connect.mayoclinic.org/comment/804136/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

Anyone on here with a high Chromogranin A blood results. Finding it difficult to get answers....

https://connect.mayoclinic.org/comment/801937/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

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