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266 total results
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Discussions (32)
Comments (234)
Comment
Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...
https://connect.mayoclinic.org/comment/1208675/
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Discussion:
Clay colored bowels & diarrhea side effects with Octreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 10:09pm
Comment
Hi harley4650, sorry to hear that treatment is not working as hoped. In addition to the...
https://connect.mayoclinic.org/comment/1037432/
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Discussion:
Treatment for GI NET with liver mets not working: Options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 20, 2024
Comment
Glad to join this group. My tumor on the outside of the small intestine was found...
https://connect.mayoclinic.org/comment/886230/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 27, 2023
Comment
Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...
https://connect.mayoclinic.org/comment/885814/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
Yes, there is a diagnostic test you can and should have. It's a PT CT Dototate...
https://connect.mayoclinic.org/comment/792451/
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Discussion:
Neuroendocrine tumor: What tests are used for diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 4, 2023
Comment
Kwan, I had PRRT at Mayo in Phoenix from April - October 2021 for various non-resectable...
https://connect.mayoclinic.org/comment/1060569/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1, 2024
Comment
Hi @taneall I am in the same boat as your husband...grade 1, stage 4. It is...
https://connect.mayoclinic.org/comment/892998/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 9, 2023
Comment
Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...
https://connect.mayoclinic.org/comment/942618/
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Discussion:
Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 5, 2023
Comment
Hello, New here, found the group when searching NET on the Mayo Clinic website. My husband...
https://connect.mayoclinic.org/comment/800940/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 24, 2023
Comment
Hello Everyone I also have NETs that has metastasized on the inside of my Liver. I...
https://connect.mayoclinic.org/comment/739390/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 19, 2022
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