Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello. Anyone out there diagnosed with grade one tumor of small intestine? I had section of...

https://connect.mayoclinic.org/comment/813197/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Comment

@hopeful33250 In short bowel syndrome (SBS), the body has difficulty absorbing water because a significant portion...

https://connect.mayoclinic.org/comment/1429335/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 2, 2025

Comment

Hi, my wife will be meeting with the doctor tomorrow regarding NETS metastasizing in the small...

https://connect.mayoclinic.org/comment/1528904/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 9:42am

Comment

Hello @stevestenberg31, I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion...

https://connect.mayoclinic.org/comment/829489/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Comment

Did your doctors do a Chromogranin A test to determine if you have high levels? That...

https://connect.mayoclinic.org/comment/1484142/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 5:06pm

Comment

You had 2 ft of small intestine removed due to NETs. I'm assuming you also had...

https://connect.mayoclinic.org/comment/1467938/

Discussion: Lanreotide side effects: Anyone having GI issues?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2025

Comment

Hi, I had a ct scan for something else and many tumors showed up in the...

https://connect.mayoclinic.org/comment/1371172/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2025

Comment

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

Hello @carver1164 and welcome to Connect. As you have been diagnosed with a GIST or neuroendocrine...

https://connect.mayoclinic.org/comment/1332274/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

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