Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Search
Search Icon
Clear Search
Start a new discussion
plus
358 total results
All
Discussions (44)
Comments (314)
Comment
I also was diagnosed stage 4 primary in the small intestine and spread to the liver...
https://connect.mayoclinic.org/comment/1391349/
Copy link to clipboard
Discussion:
Neuroendocrine carcinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 11 6:31am
Comment
Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...
https://connect.mayoclinic.org/comment/797748/
Copy link to clipboard
Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 16, 2023
Comment
Hi! Thank you for sending the article, this is the one I had read and found...
https://connect.mayoclinic.org/comment/948561/
Copy link to clipboard
Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 16, 2023
Comment
My primary NET was in the small intestine lining—did not show up in any scans. I...
https://connect.mayoclinic.org/comment/918263/
Copy link to clipboard
Discussion:
Thank you for your words of encouragement on this journey! Now ???
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 24, 2023
Comment
Same here. Had colon cancer and had all my large intestine removed 3 yrs ago now...
https://connect.mayoclinic.org/comment/232851/
Copy link to clipboard
Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Feb 6, 2019
Comment
UPDATE: On January 28 I had surgery. 27cm of the small intestine was removed and 15cm...
https://connect.mayoclinic.org/comment/329142/
Copy link to clipboard
Discussion:
Small bowel NET and colon cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 4, 2021
Comment
@isaiah5417nt, when I had a blockage in my small intestine in 2018, they also found one...
https://connect.mayoclinic.org/comment/835728/
Copy link to clipboard
Discussion:
Anyone have a stomach NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...
https://connect.mayoclinic.org/comment/883717/
Copy link to clipboard
Discussion:
Anyone have swelling with liver metastases?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
I’m having similar problems and am no sure whether it’s the lanreotide or the 15” removed...
https://connect.mayoclinic.org/comment/858717/
Copy link to clipboard
Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 12, 2023
Comment
At a week out of surgery, I was not given any dietary restrictions, BUT I have...
https://connect.mayoclinic.org/comment/1371830/
Copy link to clipboard
Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 16 10:17am
First
Previous
...
7
8
9
10
11
12
13
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect