Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

409 total results

Comment

@nannybb I just copied this from Mayo's website: Carcinoid tumors are a type of slow-growing cancer...

https://connect.mayoclinic.org/comment/1430781/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Comment

Did your doctors do a Chromogranin A test to determine if you have high levels? That...

https://connect.mayoclinic.org/comment/1484142/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 5:06pm

Comment

You had 2 ft of small intestine removed due to NETs. I'm assuming you also had...

https://connect.mayoclinic.org/comment/1467938/

Discussion: Lanreotide side effects: Anyone having GI issues?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2025

Comment

Hi, I had a ct scan for something else and many tumors showed up in the...

https://connect.mayoclinic.org/comment/1371172/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2025

Comment

Hello @carver1164 and welcome to Connect. As you have been diagnosed with a GIST or neuroendocrine...

https://connect.mayoclinic.org/comment/1332274/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

Hello @stevestenberg31, I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion...

https://connect.mayoclinic.org/comment/829489/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

Hi there Vinnie, I was recently diagnosed with the same, metastasized to liver. Did you have...

https://connect.mayoclinic.org/comment/903584/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

Thank you for taking the time to respond.. I just found all of this out on...

https://connect.mayoclinic.org/comment/1350633/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Pancreatic Cancer

Follow

3571

5 minutes ago

Follow

8199

22 minutes ago

Digestive Health

Follow

18345

4 hours ago

Cancer: Managing Symptoms

Follow

5679

10 hours ago

Melanoma & Skin Cancer

Follow

1073

15 hours ago