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233 total results
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Discussions (27)
Comments (206)
Comment
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...
https://connect.mayoclinic.org/comment/1224889/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 29 3:56pm
Comment
I was diagnosed with this rare condition 6 years ago . I had a persistent cough...
https://connect.mayoclinic.org/comment/775955/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 21, 2022
Comment
I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5....
https://connect.mayoclinic.org/comment/1266745/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25 4:39pm
Comment
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 24 10:48pm
Comment
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
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Discussion:
Diagnosed with DIPNECH yesterday!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 10:59pm
Comment
Typical carcinoids and DIPNECH are not associated with smoking. The majority of cases are non-smokers and...
https://connect.mayoclinic.org/comment/1288434/
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Discussion:
I am 75 and have carcinoid tumors NET in lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23 5:59pm
Comment
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
Thank you and we feel the same way. Why not monitor at this point. She feels...
https://connect.mayoclinic.org/comment/1111437/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25, 2024
Comment
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
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