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226 total results
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Discussions (26)
Comments (200)
Comment
I was diagnosed with this rare condition 6 years ago . I had a persistent cough...
https://connect.mayoclinic.org/comment/775955/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 21, 2022
Comment
I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5....
https://connect.mayoclinic.org/comment/1266745/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25 4:39pm
Comment
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 24 10:48pm
Comment
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
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Discussion:
Diagnosed with DIPNECH yesterday!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 10:59pm
Comment
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
Thank you and we feel the same way. Why not monitor at this point. She feels...
https://connect.mayoclinic.org/comment/1111437/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25, 2024
Comment
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
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Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2024
Comment
Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...
https://connect.mayoclinic.org/comment/1106611/
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Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2024
Comment
The biopsy on it was completed 2 years ago before my hysterectomy, the Dr. who did...
https://connect.mayoclinic.org/comment/1078008/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 30, 2024
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