Neuroendocrine Tumors (NETs) Support Group

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Comment

@ggiinnaa I've asked my lung nurse can typical carcinoid turn atypical she said no she said...

https://connect.mayoclinic.org/comment/1440975/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2025

Comment

@californiazebra @nannybb @jessie1990 I just got off a Mayo NETs support group call. A lady was...

https://connect.mayoclinic.org/comment/1432500/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Comment

@nannybb my pet scan came back clear no other tumors or anything suspicious just the tumor...

https://connect.mayoclinic.org/comment/1430648/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

I'm so glad I read your post just now. I am going to see my surgeon...

https://connect.mayoclinic.org/comment/1430238/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Comment

Sorry the removal was incomplete. My suggestion is ask (insist) to see a NET specialist for...

https://connect.mayoclinic.org/comment/1426993/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Comment

I just watched lunch with docs on YouTube from CCF carcinoid cancer foundation with Robert Ramirez...

https://connect.mayoclinic.org/comment/1417594/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2025

Comment

@elementalmiss, I'd like to add my welcome. I added your question to the Neuroendocrine Tumors (NETs)...

https://connect.mayoclinic.org/comment/1378363/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2025

Comment

Hi @blm1024 Welcome! Glad you’re in the other side of surgery. I have typical lung carcinoids...

https://connect.mayoclinic.org/comment/1350349/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

I have lung nets.... along with 1 Adenocarcinoma. The top right lobe and parts of the...

https://connect.mayoclinic.org/comment/1323823/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2025

Comment

I was told not to worry about it. That is difficult to do. I also have...

https://connect.mayoclinic.org/comment/1274404/

Discussion: Could a mass on adrenal gland be linked to my carcinoid lung tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2025