Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...

https://connect.mayoclinic.org/comment/1332000/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

My chromogranin has been over 1200 for more than 3 years. Although I have been alarmed...

https://connect.mayoclinic.org/comment/1261911/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2025

Comment

Finding out you may have a net is a hard thing to deal with! Stay positive...

https://connect.mayoclinic.org/comment/1226616/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Comment

@joannem Hello and welcome to Mayo Connect. Yes, carcinoids are an unusual type of cancer and...

https://connect.mayoclinic.org/comment/110438/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2016

Comment

Wow, you've gone through a lot as well. I totally agree on the Famotidine. My chromogranin...

https://connect.mayoclinic.org/comment/1078626/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2024

Comment

Hey! Can I ask you if you fin the cause of your high chromogranin levels? I...

https://connect.mayoclinic.org/comment/1075446/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Comment

After my whipple procedure Mar 2020 my Chromogranin A and Serotonin levels remained higher than normal,...

https://connect.mayoclinic.org/comment/967519/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Comment

We took her to Apollo hospitals in Hyderabad. They did a chromogranin a test and that...

https://connect.mayoclinic.org/comment/941294/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Comment

An MRI found a 1.7 tumor in the trail of my pancreas. My doctor immediately sent...

https://connect.mayoclinic.org/comment/923971/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2023

Comment

2590 chromagranin A, I know HIGH right. Dotatate scan positive area pancreas and octreo scan showed...

https://connect.mayoclinic.org/comment/896692/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

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