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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Surgery on Small Intestine
Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...
Last active: Aug 15, 2025
Discussion
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Last active: Apr 23, 2025
Discussion
New NET in liver and small intestine
‘Im a 74 yr old woman. A NET tumor in my small intestine was removed about 18 months ago. This month a CT found two...
Last active: Nov 12, 2025
Discussion
Anyone have a neuroendocrine tumor in small intestine?
Are these tumors benign? I was told it is small and most was removed by endoscopy but in an area in the duodenum where surgery...
Last active: Apr 2, 2025
Discussion
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
Last active: Apr 3, 2025
Discussion
I recently had surgery to remove NET in small intestine
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
Last active: May 12, 2025
Discussion
Can anyone share information about NET in small intestine?
I was recently diagnosed with a NET in my small intestine. Dont know much and some of the internet sites are freaking me out about...
Last active: Jan 10, 2025
Discussion
What do I need to know about NETS?
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Last active: Sep 11, 2023
Discussion
New spots showing up
Just an update….I am 72 years old with stage 4 grade 2 neuroendocrine cancer (functional but no symptoms ). Primary in my small intestine with...
Last active: Mar 16 6:25pm