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Neuroendocrine Tumors (NETs) Support Group

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NET tumor of pancreas (1 cm) diagnosed
I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for...
Last active: Jul 28, 2025
Discussion
Need more information on NET in head of pancreas
Am trying to find out more about net in the head of pancreas any information would be appreciated this makes a year I have add...
Last active: May 26 7:57pm
Discussion
Follow up surgery for PNET
I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...
Last active: Sep 24, 2023
Discussion
What is staging for pancreatic NETs?
Just wondering the criteria for staging. My 1.6cm pNET was removed and discovered it spread to one lymph node. Very little of it was found...
Last active: Aug 6, 2025
Discussion
NET-VIPoma pancreatic tumors
Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...
Last active: Jan 4, 2023
Discussion
Scared - Suspected NET on tail of the pancreas
Confused by the information online re: NETs. There is a 2.3 x 1.7 mass on the tail of my pancreas with no vascular activity. The...
Last active: Mar 13, 2023
Discussion
Tomorrow is Surgery Day: NETs in pancreas tail
After a surprise CT Scan revealed a 2CM Neuroendocrine Tumor on the tail of my pancreas in February I am finally going in for surgery...
Last active: Jul 7, 2023
Discussion
Finished PRRT and I'm wondering about others' results.
My husband completed 4 Lutathera treatments and had his first PET/CT with intravenous contrast (Dototate). He has source NET in pancreas metastasized to liver. Diagnosis...
Last active: Jan 23 11:49am
Discussion
Just diagnosed with pancreatic NET stage 1
I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t...
Last active: May 14, 2024
Discussion
NET in body of pancreas: What are my treatment options?
I have two tumors in body of pancreas 1.4 cm and a 6 mm. One was biopsies and apparently it’s a NET. Was told to...
Last active: Jun 16, 2024