Neuroendocrine Tumors (NETs) Support Group

Hola buenas tardes. Mi nombre es Gustavo. Soy de Buenos Aires , Argentina. A mí esposa le extirparon un tumor neuroendocrino secretor de ACTH, lo...

My CHROMOGRANIN A test shows a reading 0f 1971 what does this mean. I completed throat cancer 3 months ago and was informed it is...

I'm 5'8", age 62 years. I now weigh 133 lbs, 25 lbs lost since last Spring. I self-ordered a group of cancer marker tests, all...

Does anyone know how much CGA results can vary from lab to lab. Following are the last four CGA results for my wife: 75 (11/16...

I’m not sure if I’m in the right place or not but I started this conversation here bc my Levels were so high. Has anyone...

I had stage 4 neuroendocrine cancer 3 years ago. They removed 55 % of my liver to remove 3 tumors and 17 inches of my...

I had my first Chromogranin A blood test in 2021. 2 months after I had the lower lobe of my left lung removed due to...

I was recently diagnosed with PNETS saw an oncologist and had a second opinion through University of Kansas. Through that session I learned my tumors...

My husband's labs are all indicating NET. His Chromogranin levels are 2474 and repeated is 1944. PET Scan did not light up. Next week is...

Lanreotide Manufacturers Approved products are manufactured by Ipsen and Cipla - does anyone have experiences when the the two products are used in ones' NET...