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Public Support Group 515 total results
Discussions (41)
Lung Nets and pain in arm pit
At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...
Anyone with lung NETs experienced significant weight loss?
Has anyone with a lung neuroendocrine tumor experienced significant weight loss?I lost 30+ lbs during the year leading up to my diagnosis of a low-grade...
Anyone have lung NETs lining your pleura?
My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....
Questions I should ask before surgery for Lung NETs?
I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...
Flushing with NETS lung cancer?
My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...
Sarcoidosis and Lung NET, upcoming surgery
Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...
Lung NET with COPD: What treatment options are there?
62 y old female, had slow growing lung nodule watched over 10+ years. Diagnosed with asthma and later COPD due to chronic cough during the...
Describe your recovery from lung NET surgery
77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
A couple of questions
One, I'm curious about NETs pain. Do they themselves cause pain or only when they are pressing on or blocking other things? I have lung...
Atypical Lung NET treated with radiation: What was your outcome?
Has anyone had this LNET treated with Radiation and what was your outcome?
I am 75 and have carcinoid tumors NET in lungs
One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...
Previous heart surgery & risks of surgery to remove lung net
I had a triple bypass 6 years ago and at that time they discovered lung nodule. It has been followed with CT scans & slowly...
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Recently diagnosed with a NET in my middle lobe of my right lung.
It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...
DO I need 2 teams if I have both Nets-lung and DIPNECH?
I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...
My journey to here...
Hi, my name is Anita. I found out I had lung NETs in March this year. I was sent for a CT scan to check...
Carcinoid NET changed to carcinoma: What's the difference?
Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...
NET Lobectomy
I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...
Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?
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