Neuroendocrine Tumors (NETs) Support Group

At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...

Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...

One, I'm curious about NETs pain. Do they themselves cause pain or only when they are pressing on or blocking other things? I have lung...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...

Has anyone had this LNET treated with Radiation and what was your outcome?

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...

Hi, my name is Anita. I found out I had lung NETs in March this year. I was sent for a CT scan to check...

I had a stage 1 nodule removed from left lobe now have a new 7mm in lower lobe 3 months after surgery and they said...

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...