Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
370 total results
Discussions (43)
PNET on tail of pancreas with numerous bilobar hepatic metastases
After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...
Last active: Jan 28, 2024
Where can I find a carcinoid syndrome specialist in Florida?!
Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...
Last active: Jun 16, 2023
My Sister and Best Friend
Hello. My sister was recently diagnosed with a pancreatic neuroendocrine tumor that has metastasized to her liver. She went into the ER presenting with signs...
Last active: Jun 23, 2023