Neuroendocrine Tumors (NETs) Support Group

I am currently living in Panama, without insurance and have been diagnosed with NETS, biopsied and they believe its origin is the small intestine ....

Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...

Because of diarrhea issues an endoscopy was preformed and the doctor found something suspicious in the small intestine. Biopsy results said it was indeed a...

1. Net's found in 2017 - pancreas / small intestine co- primaries 2. Lanreotide until 2023 when progression was identified including bone metastasis. 3. 4...

First diagnosed in 2015 and had stomach pain, vomiting ,and two weeks of diarrhea.After catscan,a blockage wasfound at the junction of large and small intestine....

Just to recap, biopsy showed neuroendrocrine tumor. Had follow up MRI. Mass wasn’t identified. Surgeon said it would be better for GI to try and...

I have been receiving treatment for carcinoid syndrome for 3 years. It is believed tumor is in small intestine. Doctors waffle back and forth about...

I have reoccurrence of two tumors, one in liver and one near small intestine, site of previous surgery. I’m currently in third round of cap/temo....

Hi! I have had hypothyroidism for many years. Now after my NET surgery on 8-7-23 in which the surgeon removed a large tumor in my...

I had my first Lanreotide injection four days ago on Monday, but was not told of any diet restrictions. I've seen that I should eat...

This past year I was diagnosed with 2 primary NET's and had two surgeries to remove them. Since having a portion of small intestine/ileum removed...

My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...

Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had...

Hello. I was diagnosed with NETs in February 2023: stage 4, grade 2, well-differentiated low-grade primary 5cm tumor in small intestine, Ki-67 5.4%, with METs...

To make a very long story short. Hubby was diagnosed in Oct 2022 with a carcinoid tumor. Dr removed a mass from the small intestine....

I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...

I went on 1/3 for my first preventative colonoscopy. I was scared to death as I am a worry wort lol. Colonoscopy went fine only...

My husband was dx with metastasized NETs originating in the small intestine 3 years ago. He's been on Sandostatin shot monthly since dx. Up until...

I have 2 questions about diagnostic tests. 1. Is oral barium contrast safe with a suspected or possible partial small intestinal obstruction? I'm concerned the...

I've had the NETs tumor for a long time and saw many doctors before diagnosis. My journey lead me down this road: 2013 Admitted to...