Neuroendocrine Tumors (NETs) Support Group

My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...

Hello. I was diagnosed with NETs in February 2023: stage 4, grade 2, well-differentiated low-grade primary 5cm tumor in small intestine, Ki-67 5.4%, with METs...

To make a very long story short. Hubby was diagnosed in Oct 2022 with a carcinoid tumor. Dr removed a mass from the small intestine....

I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...

My husband was dx with metastasized NETs originating in the small intestine 3 years ago. He's been on Sandostatin shot monthly since dx. Up until...

I've had the NETs tumor for a long time and saw many doctors before diagnosis. My journey lead me down this road: 2013 Admitted to...

I am 51 and had my first colonoscopy. One polyp with cancer was discovered and removed. The standard practice it to conduct a CT scan...

Hi, my name is Mikhail, im from Moscow, Russia. I have had NET of small incestine, surgery in july, 2023. G1, ki67-2%, pT1NOMO. Need to...

Hello, I was originally diagnosed with appendix cancer in 2016, goblet cell carcinoma with some carcinoid aspects. I had a debulking and HIPEC and 12...

on routine ct scan found a small abdominal mass. wasn't clear where it was originating from . went to gyn oncology. finally decided it wasn't...

I had surgery at Jacksonville Mayo 12 years ago to remove a section of my upper intestine and a pile of tumors in my abdomen....

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...