Neuroendocrine Tumors (NETs) Support Group

Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...

I was diagnosed with a small bowel obstruction (SBO) in 2022 that turned out to be Stage 2 NETS. Had surgery & did fine until...

Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...

Hello ! Here is an update about what we discussed last week. I had an appointment ( second opinion) yesterday at Dana Faber. At least...

I have been referred for cytoreductive/debulking surgery (at Mayo Jacksonville) because my scans show unexpected, fairly significant progression of the disease. I meet with the...

I was diagnosed with a neuroendocrine tumour on my small bowel in 2014. This was found as I went into crisis. In June 2014 my...

To make a very long story short. Hubby was diagnosed in Oct 2022 with a carcinoid tumor. Dr removed a mass from the small intestine....

I've had over a year of carcinoid syndrome symptoms, like flushing, weight loss and bowel issues. If you've been diagnosed with NETs, did the 5-HIAA...

First diagnosed in 2015 and had stomach pain, vomiting ,and two weeks of diarrhea.After catscan,a blockage wasfound at the junction of large and small intestine....

I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...

Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had...