Neuroendocrine Tumors (NETs): Discussions

@laree I would assume the maintenance shots are Octreotide or Lanreotide injections done on a monthly...

https://connect.mayoclinic.org/comment/1401182/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25 12:35pm

So sorry to reply in septembre i ve been very busy with my husband and i...

https://connect.mayoclinic.org/comment/1394123/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15 8:14pm

Don’t know if you know However If you get Octreotide on Monday you have to wait...

https://connect.mayoclinic.org/comment/1387707/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 5 9:40pm

@phyllisden Glad to know the combination of PRRT with Octreotide have produced stable result for you....

https://connect.mayoclinic.org/comment/1060680/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Treatment with prrt or octreotide

https://connect.mayoclinic.org/comment/90130/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

@pipo It's a long list. Distal Pancreatectomy Y90 to both lobes of liver Octreotide/Lanreotide Cyberknife to...

https://connect.mayoclinic.org/comment/1407713/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3 4:05pm

Great news What is the difference between octreotide and lanreotide I currently switched doctors and she...

https://connect.mayoclinic.org/comment/727432/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

They are the monthly octreotide injections

https://connect.mayoclinic.org/comment/748531/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

I found this info on the internet. Might be useful to understand these drugs. Octreotide is...

https://connect.mayoclinic.org/comment/1250720/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 6:31am

That is great news! I agree, Octreotide or Lan. shots really help with hormonal issues.

https://connect.mayoclinic.org/comment/1360742/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 12:19pm

I appreciate your sharing your diagnosis and treatment. I have one doctor recommending octreotide and one...

https://connect.mayoclinic.org/comment/1161763/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

Hair thinning, fatigue, low blood pressure and heart rate, blood sugar spikes. I also started breast...

https://connect.mayoclinic.org/comment/1172022/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots....

https://connect.mayoclinic.org/comment/1410494/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

You mention Octreotide and ability to avoid so far. This has been recommended for me but...

https://connect.mayoclinic.org/comment/817247/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Have started the octreotide and so far so good.

https://connect.mayoclinic.org/comment/851962/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2023

@gprior Have you tried octreotide injections for respiratory symptoms? It has been life changing for me....

https://connect.mayoclinic.org/comment/1142710/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Interested that octreotide was not prescribed for you. Seems like it is the norm. Would be...

https://connect.mayoclinic.org/comment/1171807/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

I just pulled this from Mayo's website: "Octreotide injection is used to treat severe diarrhea and...

https://connect.mayoclinic.org/comment/1345945/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 1:50pm

The octreotide interferes with the radioactive tracer given when doing a pet scan So the ideal...

https://connect.mayoclinic.org/comment/1388144/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 2:35pm

Neuroendocrine Tumors (NETs) Support Group