Neuroendocrine Tumors (NETs) Support Group

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Comments (271)

I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small...

https://connect.mayoclinic.org/comment/1280086/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 11:16am

@bluebell, So sorry to hear you’re having struggles with your diet post surgery, but I certainly...

https://connect.mayoclinic.org/comment/943818/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Digestion issues are different for everyone. I had about a yard of small intestine removed and...

https://connect.mayoclinic.org/comment/879118/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Hello @vickihorseman and welcome to Mayo Connect. From your post, it looks like you have had...

https://connect.mayoclinic.org/comment/1171737/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

3 yrs ago a NET removed from small intestine during endoscopy - since then all labs...

https://connect.mayoclinic.org/comment/1012292/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2024

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...

https://connect.mayoclinic.org/comment/1251442/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6 1:53am

Thank you Colleen. I’m a newbie and appreciate your patience. After almost a year of struggle...

https://connect.mayoclinic.org/comment/669817/

Discussion: Questions about carcinoid treatment and diet

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...

https://connect.mayoclinic.org/comment/830736/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2023

Nana120, welcome to the Mayo Connect online support group for Neuroendocrine tumor patients. I hope you’ll...

https://connect.mayoclinic.org/comment/898735/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Welcome Iniemczura to the Mayo online support group for neuroendocrine tumors. I hope you find this...

https://connect.mayoclinic.org/comment/894050/

Discussion: more info on gasstric NET w/liver mets and progression of symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Oops I forgot to repost my thread about my journey before sending the last message to...

https://connect.mayoclinic.org/comment/1239033/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 10:07am

@helloitsme, Something you said in your initial post just struck a chord with me, and that...

https://connect.mayoclinic.org/comment/854505/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

ricki8, I haven't been part of this conversation, but decided to join tonight. I went to...

https://connect.mayoclinic.org/comment/1009722/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2024

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...

https://connect.mayoclinic.org/comment/809267/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

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