Neuroendocrine Tumors (NETs) Support Group

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Comments (224)

After my whipple procedure Mar 2020 my Chromogranin A and Serotonin levels remained higher than normal,...

https://connect.mayoclinic.org/comment/967519/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

We took her to Apollo hospitals in Hyderabad. They did a chromogranin a test and that...

https://connect.mayoclinic.org/comment/941294/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

An MRI found a 1.7 tumor in the trail of my pancreas. My doctor immediately sent...

https://connect.mayoclinic.org/comment/923971/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2023

@gustavo1975 I agree i had a NET removed from my small intestine in 2004 now 21...

https://connect.mayoclinic.org/comment/1490529/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 5:08pm

By any chance do you take PPI’s? (Pepcid, Zantac etc) Proton pump inhibitors will increase chromogranin.

https://connect.mayoclinic.org/comment/1127976/

Discussion: My Chromogranin numbers are high. What is a more accurate test?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

Mostly what I’ve read explains chromogranin a is a reliable bio marker for endocrine cancers. It...

https://connect.mayoclinic.org/comment/1088071/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

I was not having symptoms, except extreme fatigue. I have to get my esophagus stretched because...

https://connect.mayoclinic.org/comment/1072630/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Followers of this discussion may also be interested in these related discussions: - High or Fluctuating...

https://connect.mayoclinic.org/comment/1050522/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially...

https://connect.mayoclinic.org/comment/1013141/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

My CA 125 was high ( hence, endometrial cancer) Also high: Chromogranin A AG GI (CA...

https://connect.mayoclinic.org/comment/972416/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Hello! Here are a most common tumor markers: Chromogranin A Gastrin Serotonin AG-GI 19-9 ( CA...

https://connect.mayoclinic.org/comment/972148/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Hello My mom aged 57 is going through a similar set of problems. Back pain. To...

https://connect.mayoclinic.org/comment/944751/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

I'm exactly your age and my situation appears to be exactly like yours. But my journey...

https://connect.mayoclinic.org/comment/941331/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

if you are taking proton inhibitors it can increase your Chromogranin A results. Something I recently...

https://connect.mayoclinic.org/comment/926200/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

I had another PET last week. They suggest I get an Adrenal MRI… possible tumors. Had...

https://connect.mayoclinic.org/comment/900814/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2023

Hi. My Chromagranin A also elevated at 2590, an elevated 5-HIAA and elevated somatostatin level. Octreo...

https://connect.mayoclinic.org/comment/893983/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Thank you Teresa! You are spot on on my intension. The Ki67 was done and found...

https://connect.mayoclinic.org/comment/885535/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Hi, i hope someone can make my mind ease My mom since her period ended she...

https://connect.mayoclinic.org/comment/851567/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

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