Neuroendocrine Tumors (NETs) Support Group

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Yes. I am seeing a homeopathic doctor still. Detoxification of my GI Organs; as well as...

https://connect.mayoclinic.org/comment/643477/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Good Morning. I recently had a (68)Ga-DOTATATE PET/CT because of a very high Chromogranin A level-1600....

https://connect.mayoclinic.org/comment/624305/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2021

By any chance do you take PPI’s? (Pepcid, Zantac etc) Proton pump inhibitors will increase chromogranin.

https://connect.mayoclinic.org/comment/1127976/

Discussion: My Chromogranin numbers are high. What is a more accurate test?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

Mostly what I’ve read explains chromogranin a is a reliable bio marker for endocrine cancers. It...

https://connect.mayoclinic.org/comment/1088071/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

I was not having symptoms, except extreme fatigue. I have to get my esophagus stretched because...

https://connect.mayoclinic.org/comment/1072630/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Hi Adding a five day SBRT radiation starting next week to hit one lesion in my...

https://connect.mayoclinic.org/comment/1025698/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially...

https://connect.mayoclinic.org/comment/1013141/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

My CA 125 was high ( hence, endometrial cancer) Also high: Chromogranin A AG GI (CA...

https://connect.mayoclinic.org/comment/972416/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

Hello! Here are a most common tumor markers: Chromogranin A Gastrin Serotonin AG-GI 19-9 ( CA...

https://connect.mayoclinic.org/comment/972148/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2023

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Hello My mom aged 57 is going through a similar set of problems. Back pain. To...

https://connect.mayoclinic.org/comment/944751/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

I'm exactly your age and my situation appears to be exactly like yours. But my journey...

https://connect.mayoclinic.org/comment/941331/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

if you are taking proton inhibitors it can increase your Chromogranin A results. Something I recently...

https://connect.mayoclinic.org/comment/926200/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

I had another PET last week. They suggest I get an Adrenal MRI… possible tumors. Had...

https://connect.mayoclinic.org/comment/900814/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2023

Hi. My Chromagranin A also elevated at 2590, an elevated 5-HIAA and elevated somatostatin level. Octreo...

https://connect.mayoclinic.org/comment/893983/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Thank you Teresa! You are spot on on my intension. The Ki67 was done and found...

https://connect.mayoclinic.org/comment/885535/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Hi, i hope someone can make my mind ease My mom since her period ended she...

https://connect.mayoclinic.org/comment/851567/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Thank you for moving my post ! And for sure I will continue to share! Because...

https://connect.mayoclinic.org/comment/827678/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

I’ve had test after test for vague symptoms of profound fatigue, trouble swallowing, weight loss, and...

https://connect.mayoclinic.org/comment/277060/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

So the liver is where the net started or did it start somewhere else and spread...

https://connect.mayoclinic.org/comment/267666/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2019

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