Neuroendocrine Tumors (NETs): Discussions | Page 7

I have received the short term Octreotide while in the hospital. It was given to me...

https://connect.mayoclinic.org/comment/1132551/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2024

I am having the once per month injection of Octreotide (sp?). The drug has calmed my...

https://connect.mayoclinic.org/comment/1349207/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 11:28pm

I have GERD too. Before my DIPNECH and lung NETs was diagnosed even though we knew...

https://connect.mayoclinic.org/comment/1329913/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 12:24pm

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Hello. Your situation is very much like mine. I was diagnosed last November. I'm receiving monthly...

https://connect.mayoclinic.org/comment/907888/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2023

My husband took Octreotide shots for about 18 months, side effects slightly looser stools & then...

https://connect.mayoclinic.org/comment/1269466/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 2:20pm

My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...

https://connect.mayoclinic.org/comment/1144312/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2024

Everyones situation is different, I started with Lanreotide, for the first 3 months, then switched to...

https://connect.mayoclinic.org/comment/1364750/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6 7:52am

@llr9f, It is so good to hear from you again. I'm glad that you have some...

https://connect.mayoclinic.org/comment/1329466/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 7:37pm

I don’t mind you asking at all :). The allergy desensitization involved an admission to ICU...

https://connect.mayoclinic.org/comment/839294/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Welcome Lenora, I'm so glad that you posted about your NETs story after following the discussions...

https://connect.mayoclinic.org/comment/668647/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...

https://connect.mayoclinic.org/comment/1067737/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

I was hoping someone had the same problem and had the answer to reducing the mass....

https://connect.mayoclinic.org/comment/739376/

Discussion: Lanreotide injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the...

https://connect.mayoclinic.org/comment/668464/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

Good point about Octreotide, I would definitely be asking the Dr. I made it almost 2...

https://connect.mayoclinic.org/comment/1274338/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 4:41pm

Was diagnosed with stage IV with primary in Duednum and 4 tumors in liver. Been on...

https://connect.mayoclinic.org/comment/1365332/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6 8:57pm

@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues...

https://connect.mayoclinic.org/comment/830375/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...

https://connect.mayoclinic.org/comment/1350383/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 1:21pm

Wow! To all in this discussion. My husband is due to have his first liver debulking...

https://connect.mayoclinic.org/comment/771459/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Neuroendocrine Tumors (NETs) Support Group