Neuroendocrine Tumors (NETs): Discussions | Page 5

Thank you @hopeful33250, it is much appreciated. She has had a CT scan and a Tektrotyd...

https://connect.mayoclinic.org/comment/749330/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2022

Hi @pattirushing It's a little bit hard for me to single out all the octreotide side...

https://connect.mayoclinic.org/comment/838730/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Three weeks after 2nd surgery I started the Octreotide injections; no adverse side effects except for...

https://connect.mayoclinic.org/comment/1269922/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 9:18am

@markmark007 Thank you for your prompt reply. Wonder if PRRT is the first treatment option prescribed...

https://connect.mayoclinic.org/comment/968905/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2023

How did your embolization go? I have grade 2 metastatic to the liver with no known...

https://connect.mayoclinic.org/comment/1364518/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 5:56pm

My brother had PRRT after having surgery and Octreotide injections every 28 days. The tumor growth...

https://connect.mayoclinic.org/comment/877313/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Lots of variety for you. Interesting (and good) that all your nodules are in one lung....

https://connect.mayoclinic.org/comment/1229577/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 6:28pm

Only if the give me anesthesia will I have to get an injection of octreotide I...

https://connect.mayoclinic.org/comment/1322184/

Discussion: Root canal without Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7 9:58am

@cmc188 I don't blame you for not wanting side effects without any benefit. I have had...

https://connect.mayoclinic.org/comment/1206123/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 1:23pm

https://www.google.com/search?q=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&rlz=1C1UEAD_enUS1116US1116&oq=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRiPAjIHCAIQIRiPAtIBCTIzODIzajBqN6gCALACAA&sourceid=chrome&ie=UTF-8 Above is the source. I have read that it is not 100% effective with everyone...

https://connect.mayoclinic.org/comment/1346165/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 8:36pm

@ggiinnaa You'll enjoy life a lot more without the chronic cough. Ask about octreotide injections. Life...

https://connect.mayoclinic.org/comment/1264531/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 10:51pm

Great! It sounds like you've been doing your research. Please keep us posted. I'd love to...

https://connect.mayoclinic.org/comment/838724/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

@sophiarose I’m sorry you’re having such a rough time with treatment. I have been taking the...

https://connect.mayoclinic.org/comment/1128152/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2024

At minimum every 6 months, but also as needed if symptoms dictate. My endocrinologist is very...

https://connect.mayoclinic.org/comment/843305/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

We received the confirmation from Mayo. His diagnosis is Atypical Stage 3/grade 2. He was given...

https://connect.mayoclinic.org/comment/1330147/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 6:44pm

I have had four rounds of Lutathera. I continue to be on an injection of Lanreotide...

https://connect.mayoclinic.org/comment/806746/

Discussion: Recurrence with Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

I asked my oncologist about the NO EPI and if it should be on my medical...

https://connect.mayoclinic.org/comment/137547/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2017

What treatment did they prescribe when your tumors were found 16 years ago? How long have...

https://connect.mayoclinic.org/comment/1179256/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Neuroendocrine Tumors (NETs) Support Group