Neuroendocrine Tumors (NETs) Support Group

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Hi I am so sorry to hear of your situation I had primary NET liver cancer...

https://connect.mayoclinic.org/comment/776351/

Discussion: Does sandostatin work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

I've only just been diagnosed with two neuroendocrine tumors in the liver. I'm very interested in...

https://connect.mayoclinic.org/comment/795642/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

@siluka You are right to recommend a second opinion. My liver NETS are very tiny, but...

https://connect.mayoclinic.org/comment/1435694/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

I have neuroendocrine primary in midgut and mets to liver about 20 small tumors, the primary...

https://connect.mayoclinic.org/comment/90144/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2016

https://connect.mayoclinic.org/comment/1198291/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

MRI for my liver mets

https://connect.mayoclinic.org/comment/1207367/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Could it be they want to get it removed before it spreads to the liver or...

https://connect.mayoclinic.org/comment/1320835/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Did the Radiotherapy reduce the liver Mets?

https://connect.mayoclinic.org/comment/1352422/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

@jasonrex86 I have not done RFA but I have had a hepatic artery embolization to treat...

https://connect.mayoclinic.org/comment/1527291/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 9:08am

Yes, the plan is to remove the mass on tail of pancreas, spleen, gall badder, and...

https://connect.mayoclinic.org/comment/817761/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Hi @aliatl I was diagnosed with lung to liver net July 2021; first dr very negative:...

https://connect.mayoclinic.org/comment/824589/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Ask your team of doctors if CAP/TEM chemo pill is an option for NET. My wife...

https://connect.mayoclinic.org/comment/1035319/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Has any one else also been told they have fatty liver and would loosing weight in...

https://connect.mayoclinic.org/comment/1197601/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

Has anyone else ever got an Enlarged liver after a bland embolization? I also got a...

https://connect.mayoclinic.org/comment/933992/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

How old were you when you had the liver transplant? Did you have NETS anywhere else?...

https://connect.mayoclinic.org/comment/949822/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

Is your liver the primary NETS site?

https://connect.mayoclinic.org/comment/1306165/

Discussion: Tumor w/ minor grow with no Octreotide & larger growth w/ the shot

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2025

My liver panels have all been normal. For the most part, the liver lesions have been...

https://connect.mayoclinic.org/comment/828983/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

@qbandoc1, how did the liver ablation go?

https://connect.mayoclinic.org/comment/1176393/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2024

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