Neuroendocrine Tumors (NETs) Support Group

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Comments (2,337)

Happy to here you doing better , I just joined this group and it’s paying off...

https://connect.mayoclinic.org/comment/747593/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

@tgsenn70: I am also NET small intestine primary with liver metastases, diagnosed 10/2022 with 28 day...

https://connect.mayoclinic.org/comment/1282563/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2025

I agree with Linda totally. I was diagnosed in 2013 and likely had this cancer much...

https://connect.mayoclinic.org/comment/1273880/

Discussion: Found out my dad has cancer: They say it’s Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2025

@osiejay26… I hope you have received results of your recent scans. Since I have NET with...

https://connect.mayoclinic.org/comment/805406/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

I had net tumor on small intestine was removed with 3ft of intestine on 5/22, looks...

https://connect.mayoclinic.org/comment/753325/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

It depends on the tumor type, biology, location, and treatment response. Overall, liver lesions are very...

https://connect.mayoclinic.org/comment/1315812/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 29, 2025

Seems like it is functional gastrinoma tumor and so is Jon with symptoms of diaharrea. Whipple...

https://connect.mayoclinic.org/comment/1288593/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

I just had to look up Sandostatin. 😊 It looks like maybe it’s used for diarrhea....

https://connect.mayoclinic.org/comment/1205405/

Discussion: Anyone had a large NET in the liver? What treatment did you have?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

Hi. I also have NET starting in the lung. It has spread to liver and lymph...

https://connect.mayoclinic.org/comment/835071/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Today I had a visit with my oncologist after the surgery. Original huge tumor of the...

https://connect.mayoclinic.org/comment/823714/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Hello @grandfather2, and welcome to the NETs support group on Mayo Clinic Connect. It sounds like...

https://connect.mayoclinic.org/comment/1425253/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2025

Good morning, My NET is Pancreas to Liver also to numerous to operate, some were over...

https://connect.mayoclinic.org/comment/913398/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

My husband has neuroendocrine pancreatic cancer stage four in liver as well. He's been having trouble...

https://connect.mayoclinic.org/comment/796605/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

Hi Lenora, my husband has been diagnosed with Neuroendocrine cancer and we knew nothing about it?...

https://connect.mayoclinic.org/comment/669455/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2022

@milagro45pr - I was diagnosed with huge PNET. Had surgery on Feb.1. Ended up with removing...

https://connect.mayoclinic.org/comment/810255/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Hi, Bridget. I'm fairly new to this support group too. Just wanted to let you know...

https://connect.mayoclinic.org/comment/800436/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Hello @carcinoid23462, It was good to read about your history with liver surgery and treatments. It...

https://connect.mayoclinic.org/comment/790005/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2022

I neglected to include how my doctor treated my carcinoid cancer at the onset, after removing...

https://connect.mayoclinic.org/comment/762518/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Yes!!! My last PET scan (a few weeks ago) showed ‘no new spread or tumor growth’...

https://connect.mayoclinic.org/comment/1353068/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2025

Wow. You have been through quite alot but clearly are tenacious which is a good thing...

https://connect.mayoclinic.org/comment/1332712/

Discussion: So many questions about wjether or not I have Carcinoid Cancer/NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2025

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