Neuroendocrine Tumors (NETs): Discussions | Page 42

Hello @dadcue You are asking good questions! As @tjstaufr said in her post, CgA test results...

https://connect.mayoclinic.org/comment/1511312/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 1:42pm

Endocrine tumors are difficult to diagnosed and in our opinion, difficult to treat. My husband was...

https://connect.mayoclinic.org/comment/1498542/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:36am

I had abdominal pain for a year . Had CT’S , ultrasounds done , all negative....

https://connect.mayoclinic.org/comment/877887/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

It is funny. That is the final scan I got for the oncologist to tell me...

https://connect.mayoclinic.org/comment/833905/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Please could you tell me where you got the Histotripsy done. I had a right haemocolectomy...

https://connect.mayoclinic.org/comment/1465686/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2025

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...

https://connect.mayoclinic.org/comment/1060558/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4...

https://connect.mayoclinic.org/comment/1268153/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2025

@pamsbass Hello, I am the wife of someone who was diagnosed 2 years ago with an...

https://connect.mayoclinic.org/comment/1481371/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 12:13pm

@briana311 I was on CAPTEM for 13 cycles. It reduced the sizes of my pnet and...

https://connect.mayoclinic.org/comment/1511532/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 7:01pm

Getting ready for my first PRRT treatment in August for stage IV primary gastric tumor with...

https://connect.mayoclinic.org/comment/1358080/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

Hello, @aliciabusiness5, and welcome to Mayo Connect. I you are dealing with lung NETs as well...

https://connect.mayoclinic.org/comment/1266869/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

The last info I saw was for now only 4 or less tumors can be treated...

https://connect.mayoclinic.org/comment/1193160/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2024

We received a 2nd opinion from Dr.Lui in June 24, regarding having back fusion surgery with...

https://connect.mayoclinic.org/comment/1142516/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Thankyou for asking, he’s doing well now, back to baseline after stopping his sandostatin injections. Just...

https://connect.mayoclinic.org/comment/1067948/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Does the nausea start with the “CAP” portion or only with the “TEM”? His doctor has...

https://connect.mayoclinic.org/comment/884044/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

@harley4650 So sorry to hear about the progression. What about the newly approved histotripsy procedure for...

https://connect.mayoclinic.org/comment/1047144/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2024

I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...

https://connect.mayoclinic.org/comment/878862/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...

https://connect.mayoclinic.org/comment/741450/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2022

Neuroendocrine Tumors (NETs) Support Group