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Comments (2,336)
Keep us posted! After my first 2 surgeries to remove/ablate a total of 11 insulinomas, the...
https://connect.mayoclinic.org/comment/896644/
I grew up in Oklahoma my Dad died of congestive heart failure my step mom died...
https://connect.mayoclinic.org/comment/845761/
@ricki8: thank you so much for the patient’s perspective of Histotripsy. I have noted your responses...
https://connect.mayoclinic.org/comment/1410784/
That is fantastic! I believe they said 15% isn't functioning. Not sure about the burden. What...
https://connect.mayoclinic.org/comment/1335556/
The doctors didn't say anything about veins, but since that part of the pancreas shares blood...
https://connect.mayoclinic.org/comment/1321687/
Yes it is. My three large tumors on my pancreas are about half the size in...
https://connect.mayoclinic.org/comment/836328/
Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was...
https://connect.mayoclinic.org/comment/807185/
I had the same situation as you do. Net tumor went from my small intestine to...
https://connect.mayoclinic.org/comment/1434068/
@espelandmt2: 01/13/26. Every NET case responds differently to treatments. I think you made a good decision...
https://connect.mayoclinic.org/comment/1481603/
Patrick, I would like to know more about your regimen and diet. I was diagnosed this...
https://connect.mayoclinic.org/comment/776233/
@jessie1990 Well, because I have started with a new doctor, he does not want to see...
https://connect.mayoclinic.org/comment/1464439/
Sorry to hear what you are going through! I have stage 4 grade 2 metatastic to...
https://connect.mayoclinic.org/comment/1282937/
Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you...
https://connect.mayoclinic.org/comment/1111157/
I’m sorry you’re going through this. My husband had the same surgery except for the liver...
https://connect.mayoclinic.org/comment/992356/
I would also recommend you have both types of petscans done. It took 5 years to...
https://connect.mayoclinic.org/comment/932546/
Hello @bmkelldog! I completely understand your frustration! Diagnosing and then locating insulinomas, due to their small...
https://connect.mayoclinic.org/comment/1339069/
Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...
https://connect.mayoclinic.org/comment/1304507/
We just met up with the oncologist. Actually the same Dr. that had treated a family...
https://connect.mayoclinic.org/comment/1219187/
I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks...
https://connect.mayoclinic.org/comment/1174717/
I have an unknown primary NET maybe intestines It has metastasized to my liver periportal lymph...
https://connect.mayoclinic.org/comment/943430/
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