Neuroendocrine Tumors (NETs): Discussions | Page 4

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

I should mention that my primary (origin) started in the small bowel and metastasized into my...

https://connect.mayoclinic.org/comment/1227757/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 1:21pm

Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...

https://connect.mayoclinic.org/comment/1104370/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....

https://connect.mayoclinic.org/comment/1218810/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:23am

"What would you do?" you asked. I"m pretty much in the same situation. I still have...

https://connect.mayoclinic.org/comment/1227644/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 11:13am

Wow thats a lot to deal with at once. I've been dealing with it since 2020...

https://connect.mayoclinic.org/comment/1289339/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 6:09am

I had a liver tumor biopsy in October even though the doctors and I all knew...

https://connect.mayoclinic.org/comment/795174/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...

https://connect.mayoclinic.org/comment/1317375/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31 2:20pm

@tgsenn70 & et al: so sorry you are in the position of choosing NET tumor treatment....

https://connect.mayoclinic.org/comment/1415807/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 hours ago

Hello, Am Ayesha from Massachusetts, just diagnosed with small bowel carcinoma, 2 weeks ago. I have...

https://connect.mayoclinic.org/comment/765099/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2022

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 4:49pm

You have been through a lot the past 6 weeks. I too had a NET 1.5...

https://connect.mayoclinic.org/comment/1221095/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 8:04am

Hi . I have small bowel net and did start on creon due to pale stools...

https://connect.mayoclinic.org/comment/1050394/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Hello, my husband (55 years old) was diagnosed with grade 1 stage 4 (primary in small...

https://connect.mayoclinic.org/comment/1295494/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 7:32am

UPDATE... NET specialist says I'm lucky. And rare as my SBNETs does not seem to have...

https://connect.mayoclinic.org/comment/1224979/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 7:08pm

I also concur with all of the above responses; I’m on year 3… Mine started as...

https://connect.mayoclinic.org/comment/1369496/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12 11:18pm

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2024

I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized...

https://connect.mayoclinic.org/comment/1309905/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21 8:57pm

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

I appreciate your sharing this experience, @musicflowers4u. I'm glad to hear that you don't have any...

https://connect.mayoclinic.org/comment/102049/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2019

Neuroendocrine Tumors (NETs) Support Group