Neuroendocrine Tumors (NETs): Discussions | Page 4

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2024

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

How much was removed did they reconnect, did you wear a colostomy bag On Saturday, May...

https://connect.mayoclinic.org/comment/1312048/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 3:37pm

There are doctors that specialize in NETs care. There are surgeons that specialize in NETs surgery....

https://connect.mayoclinic.org/comment/1204232/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 6:55am

I appreciate your sharing this experience, @musicflowers4u. I'm glad to hear that you don't have any...

https://connect.mayoclinic.org/comment/102049/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2019

I hope you get a good report on your liver spot. I had a similar spot...

https://connect.mayoclinic.org/comment/754461/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2022

Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Hi everyone, I had my whipple done on May 2020 for Gastrinoma PNET. Since July 2024...

https://connect.mayoclinic.org/comment/1149137/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2024

Hello, @riffieli Thank you for sharing this with us and let me tell you this, no...

https://connect.mayoclinic.org/comment/789572/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2022

@splendrous, my oncologist is located at the Springfield Clinic Cancer Center. My oncology surgeon is located...

https://connect.mayoclinic.org/comment/1275161/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 8:22pm

Definitely get a 2nd opinion & see a NETS surgical oncologist. Your symptoms are exactly like...

https://connect.mayoclinic.org/comment/1294227/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 11:06am

Hello. My husband was diagnosed with grade 1 stage 4 NET last year, with primary tumor...

https://connect.mayoclinic.org/comment/1283983/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 11:38am

To @tomewilson and All, I see that many of you have mentioned weight loss, difficulty eating,...

https://connect.mayoclinic.org/comment/275691/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2019

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...

https://connect.mayoclinic.org/comment/163589/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

Hi mbg20, My husband has recently had a small bowel resection on Feb 27. He originally...

https://connect.mayoclinic.org/comment/830442/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

I can't offer any advice but can empathize. Mine started in my small bowel in 2020...

https://connect.mayoclinic.org/comment/1171118/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

All I can offer is hope that the blockage problem will sort itself out soon. After...

https://connect.mayoclinic.org/comment/755129/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

Hi, I have had a resection in my small bowel 12/24. It took about a year...

https://connect.mayoclinic.org/comment/1271695/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 11:00am

My tumor was about the size of a twinkie with arms constricting my small bowel in...

https://connect.mayoclinic.org/comment/1307762/

Discussion: Deciding on best procedure: Your thoughts?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 12:28pm

Neuroendocrine Tumors (NETs) Support Group