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Public Support Group 222 total results
Comments (185)
Hello @jillyg I'm glad that you found this discussion group. I am sorry to hear of...
https://connect.mayoclinic.org/comment/1403281/
Did your endoscopy include a a biopsy that confirmed your NETs diagnosis? Somatuline Depot (Lanreotide) can...
https://connect.mayoclinic.org/comment/1495835/
Hi, Hopeful--yes, you have that right, my tumors were never caught by colonoscopy, upper endoscopy, CT...
https://connect.mayoclinic.org/comment/127208/
Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...
https://connect.mayoclinic.org/comment/1284362/
I had a small bowel resection & removal of 4 of 24 lymph nodes that had...
https://connect.mayoclinic.org/comment/1370892/
I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...
https://connect.mayoclinic.org/comment/1236191/
@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...
https://connect.mayoclinic.org/comment/1151563/
I should mention that my primary (origin) started in the small bowel and metastasized into my...
https://connect.mayoclinic.org/comment/1227757/
Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...
https://connect.mayoclinic.org/comment/1104370/
We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....
https://connect.mayoclinic.org/comment/1218810/
"What would you do?" you asked. I"m pretty much in the same situation. I still have...
https://connect.mayoclinic.org/comment/1227644/
I had a liver tumor biopsy in October even though the doctors and I all knew...
https://connect.mayoclinic.org/comment/795174/
Wow thats a lot to deal with at once. I've been dealing with it since 2020...
https://connect.mayoclinic.org/comment/1289339/
I’m very interested in joining this group and sharing/learning to control symptoms of small bowel blockage....
https://connect.mayoclinic.org/comment/1403258/
Hello, Am Ayesha from Massachusetts, just diagnosed with small bowel carcinoma, 2 weeks ago. I have...
https://connect.mayoclinic.org/comment/765099/
@hopeful33250 I have reviewed the CT-scan report which says ... "Short segment wall thickening at distal...
https://connect.mayoclinic.org/comment/1498357/
Hi Samotuline Depot is actually Lanreotide, so it is probably not a substitution. Regarding serotonin in...
https://connect.mayoclinic.org/comment/1462076/
Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...
https://connect.mayoclinic.org/comment/1350762/
Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...
https://connect.mayoclinic.org/comment/1317375/
Why did you have a CT/Pet in the first place? Did or do you have symptoms?...
https://connect.mayoclinic.org/comment/1264349/
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